THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net
S U M M A R Y
DIARY: July 19, 2010 05:22 AM Monday;
Rod Welch
Millie requests meeting at Kaiser to implement UCSF plan for Millie to
recover from UCSF medical mistakes with PARP targeted treatment.
1...Summary/Objective
..............
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CONTACTS
SUBJECTS
Default Null Subject Account for Blank Record
0403 -
0403 - ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS D9 0000. ref SDS D8 0000.
040502 -
040503 -
040504 -
040505 -
040507 - ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 010427 0830 meeting at Kaiser - Doctor Johnson notes Millie looks
040902 - so good nobody can believe she has such severe cancer, ref SDS 68
040903 - OJ6I; the doctor explained again Millie's cancer has mutated through
040904 - 11 relapses to resist chemotherapy. The doctor advised that Kaiser
040905 - has a new strategy for Millie to recover from UCSF medical mistakes by
040906 - treating cancer as a chronic disease "targeting" the genetic profile
040907 - of cancer that has mutated in patients, like Millie, to resist
040908 - chemotherapy. ref SDS 68 SJ6N
040910 - ..
040911 - On 100501 1037 Millie letter to medical team confirms Kaiser's new
040912 - strategy to treat Millie's cancer with "targeted therapy." ref SDS 69
040913 - F25O Millie requests Kaiser immediately switch from Abraxane
040914 - chemotherapy that has failed, and implement Doctor Rugo's plan at UCSF
040915 - on 090616, to treat Millie with PARP that is "targeted" to Millie's
040916 - rare patient profile of "triple negative" and avoids pain and
040917 - suffering from chemotherapy side effects, and for the purpose of
040918 - recovering from UCSF medical mistakes. ref SDS 69 U47P and ref SDS 69
040919 - U49V
040921 - ..
040922 - On 100501 2017 Doctor Rugo reports she will call and collaborate with
040923 - Doctor Johnson at Kaiser to implement the UCSF work plan for treating
040924 - Millie with PARP to recover from UCSF medical mistakes, ref SDS 70
040925 - HH4I, responding to Millie's notice earlier on 100501, that cancer is
040926 - progressing due to UCSF medical mistakes, ref SDS 69 U47P, and
040927 - requesting recovery by implementing Doctor Rugo's work plan on 090616.
040928 - ref SDS 37 KD6L
040930 - ..
040931 - On 100502 2143 Kaiser confirms that some patients respond well to new
040932 - "targeted" therapies. ref SDS 72 YX8L Kaiser contends that all of the
040933 - strategies for "targeted" therapies have been executed for Millie,
040934 - which seems conflicting with the record in this case. ref SDS 72 MZ4N
040936 - ..
040937 - On 100503 1522 Millie notifies medical team that time of the essence
040938 - to get the next treatment going. ref SDS 73 TD5W
040940 - ..
040941 - On 100503 1945 Kaiser notifies Millie to get remaining 2 treatments
040942 - with Abraxane chemotherapy that seems to be failing, and then after 3
040943 - more weeks without treatment, following a trip abroad, the doctor will
040944 - discuss "next steps." ref SDS 74 YL5N
040946 - ..
040947 - On 100503 2338 Millie reports to medical team that she will implement
040948 - Kaiser's guidance to delay changing treatments, and takes Kaiser's
040949 - letter on 010503, as assurance that recovery will be equal to changing
040950 - treatment immediately on 100505. ref SDS 75 6X7S
040952 - ..
040953 - On 100504 1609 Sara, Practice Manager for the UCSF Oncology Breast
040954 - Care Clinic, called and notified Millie that Doctor Rugo will soon
040955 - communicate with Doctor Johnson, or had already done so, to coordinate
040956 - with Kaiser on planning Millie's next treatment to recover from the
040957 - 11th relapse of cancer. ref SDS 76 NT5N
040959 - ..
040960 - On 010505 0730 Millie received the 2nd treatment at Kaiser for the 3rd
040961 - cycle of Abraxane chemotherapy, as ordered by Doctor Johnson.
040962 - ref SDS 77 KE4K
040964 - ..
040965 - On 100511 0900 cancer marker CA 15-3 520 increased another 100 points,
040966 - seemingly on an accelerating rise, which threatens to cascade out of
040967 - control, because Abraxane chemotherapy is not effective. ref SDS 78
040968 - L54I
040970 - ..
040971 - On 100512 0730 Millie received 3rd treatment for 3rd cycle of
040972 - Abraxane. ref SDS 79 KE4K
040974 - ..
040975 - On 100515 1415 Millie departed 2-week trip to Europe. ref SDS 80 PK9O
040977 - ..
040978 - On 100527 0217 Millie files claim with Kaiser Claims Resolution
040979 - Department for standard of care to recover from 11th relapse of cancer
040980 - caused by medical mistakes getting radiation treatments at UCSF on
040981 - referral from Kaiser. ref SDS 81 IZ7N
040983 - ..
040984 - On 100528 0322 Millie requests support from Medicare to separate
040985 - recovery for medical mistakes getting radiation from UCSF, from health
040986 - care benefits limited by Medicare insurance coverage. ref SDS 82 QQ6N
040988 - ..
040989 - On 100528 1031 called Medicare they have formed a team to review
040990 - Millie's case, and contacted Kaiser's Claims Resolution Department for
040991 - response to Millie's claim. ref SDS 83 4W5F
040993 - ..
040994 - 100601 0830 Doctor Johnson reported that Kaiser has not had time to
040995 - collaborate with UCSF on treatment for Millie to recover from UCSF
040996 - medical mistakes. He discussed treating Millie with MPA, but this was
040997 - not prescribed because Millie was treated with MPA in 2009, and UCSF
040998 - ended the treatment due to fears about blood clot side effects, which
040999 - were believed to cause breathing problems Millie had, though later
041000 - breathing problems were discovered to be caused by defective radiation
041001 - treatment. Since Doctor Johnson said Kaiser has no more treatments
041002 - for Millie, the only way Millie can get relief from pain caused by
041003 - cancer that is progressing without treatment is get treatment in
041004 - Hospice. Since Hospice is the only choice of care offered today,
041005 - Millie accepted this.
041007 - ..
041008 - On 100601 1531 Sharon called to schedule starting Hospice medical
041009 - services beginning tomorrow between 0900 - 1000. ref SDS 69 036C
041011 - ..
041012 - On 100602 0913 Liz provides orientation on Hospice care; she confirms
041013 - Sharon's report yesterday, that if Kaiser performs on the insurance
041014 - agreement to provide standard of care for Millie's patient profile,
041015 - than Millie can elect to recover from 11th relapse of cancer, rather
041016 - than continue with Hospice support for dying peacefully. ref SDS 70
041017 - 036C
041019 - ..
041020 - On 100602 1046 Diane received notice from Medicare to file claim for
041021 - Millie to get treatment for recovering from UCSF medical mistakes; she
041022 - is preparing a statement of claim. ref SDS 88 036C Advised Diane to
041023 - use Millie's statement of claim submitted to Kaiser on 100527.
041024 - ref SDS 88 MZ5H Eileen called later and reported that Kaiser denied
041025 - Millie's claim on the grounds that Medicare does not authorize payment
041026 - for treatment to recover from cancer, after a patient starts Hospice.
041027 - ref SDS 88 UN4M Requested that Eileen read he claim and then make a
041028 - good faith determiantion. ref SDS 88 I33H Eileen called back after
041029 - reading the claim and advised the denial of claim has been withdrawn,
041030 - and the matter is referred to Claims Resolution Department.
041031 - ref SDS 88 UN5P
041033 - ..
041034 - On 100603 0449 Millie notified medical team that Kaiser called today
041035 - about moving forward to resolve medical mistakes getting radiation
041036 - treatment at UCSF on referral from Kaiser. ref SDS 89 IX9Q
041038 - ..
041039 - On 100606 1604 Doctor Johnson notifies Millie that her cancer marker
041040 - has remained fairly stable the past 3 weeks since ending treatment
041041 - with Abraxane on 100512; actually went up less without Abraxane, than
041042 - with it, because Millie's cancer resists chemotherapy. ref SDS 90 036C
041044 - ..
041045 - On 100606 1638 Millie thanks Doctor Johnson for submitting good news
041046 - cancer marker CA 15-3 606 much smaller rise than exptected after
041047 - ending treatment for 3 weeks. ref SDS 91 036C; asks if Doctor Rugo ever
041048 - returned Doctor Johnson's call from Kaiser, as planned in Doctor
041049 - Rugo's letter on 100501?
041051 - ..
041052 - On 100606 2317 Millie receives letter from Doctor Johnson reporting
041053 - that Doctor Rugo has never returned his call asking UCSF for Millie's
041054 - treatment plan, which demonstrates failure to perform on Doctor Rugo's
041055 - commitment in UCSF letter sent to the medical team on 100501.
041056 - ref SDS 92 036C
041058 - ..
041059 - On 100607 0932 called Cherry at Medicare about progress on contacting
041060 - Kaiser to process Millie's claim filed on 100527, and planned in the
041061 - call with Medicare (Cherry and Beth) as action item #8, planned the
041062 - next day on 100528 1031, ref SDS 83 PE6P; today, Cherry did not have
041063 - time to return the call. ref SDS 93 036C
041065 - ..
041066 - On 100607 1021 called Paula at Kaiser - she said someone else is
041067 - handling Millie's claim, because the claim has not been denied, and
041068 - Paula only handles denied claims. ref SDS 94 036C; Paula further
041069 - reported that Kaiser no longer objects to demaning UCSF correct
041070 - medical mistakes, so Millie's claim should be easy to resolve.
041071 - ref SDS 94 QN9F
041073 - ..
041074 - On 100607 1117 letter to Paula confirming Kaiser's work plan to
041075 - process Millie's claim for care promptly in order to save her life.
041076 - ref SDS 95 036C
041078 - ..
041079 - On 100608 1521 called and talked to Cherry and Beth about expediting
041080 - Millie's claim at Kaiser. ref SDS 96 036C Developed work plan to have
041081 - a conference call with Kaiser tomorrow. ref SDS 96 C354 Submitted
041082 - letter to Kasier and CMS Medicare confirming work plan for tomorrow.
041083 - ref SDS 96 G84Q
041085 - ..
041086 - On 100609 1114 called CMS to expedite conference call on expediting
041087 - Millie's care. ref SDS 97 036C Cherry called and schedule telecon with
041088 - Kaiesr and CMS today 1300. ref SDS 97 8O4H Received letter from Cherry
041089 - at CMS confirming work plan for conference call at 1300. ref SDS 97
041090 - PRXY
041092 - ..
041093 - On 100609 1232 letter to CMS and Kaiser submitts agenda for conference
041094 - call to review progress on Kaiser resolving Millie's claim for
041095 - recovery from UCSF medical mistakes. ref SDS 98 036C
041097 - ..
041098 - On 100609 1300 CMS and Kaiser conference call to report progress on
041099 - reviewing Millie's claim for treatment to recover from UCSF medical
041100 - mistakes in time to be effective. ref SDS 99 036C
041102 - ..
041103 - On 100609 1522 Jennifer called for assistance processing Millie's
041104 - claim to recover from medical mistakes getting radiation treatment at
041105 - UCSF on referral from Kaiser. ref SDS A0 036C
041107 - ..
041108 - On 100611 1451 Jennifer advised Kaiser extended the date for
041109 - responding to Millie's claim from 100610 to 100624, based on Millie
041110 - filing updated statement of authorized representative. ref SDS A4 036C
041111 - Jennifer reported she reviewed 6-issues discussed on 100609, and will
041112 - address these issues responding to Millie's claim. ref SDS A4 FQ4G
041113 - Jennifer asked how Kaiser can treat Millie to recover from UCSF
041114 - medical mistakes, if Millie refuses chemotherapy and has entered
041115 - Hospice. ref SDS A4 FQ4M
041117 - ..
041118 - On 100611 2326 Millie received Jennifer's letter confirming the date
041119 - for Kaiser to respond to Millie's claim has been extended to 100624,
041120 - ref SDS A5 CV4O, and further advising that issues Kaiser will determine
041121 - responding to Millie's claim for recovering from UCSF medical
041122 - mistakes, ref SDS A5 036C, are as set out in the record for telecon on
041123 - 100609. ref SDS A0 XK50 Jennifer will call on 100615, to report
041124 - progress on respnding to Millie's claim. ref SDS A5 6P53
041126 - ..
041127 - On 100614 0257 letter to Kaiser Medicar CMS claim team requests
041128 - immediate written proposal evaluating treatment options for Millie to
041129 - consider. ref SDS A6 036C
041131 - ..
041132 - On 100616 0832 called Jennifer about her plan to call yesterday on
041133 - Tuesday to report progress Kaiser responding to Millie's claim, as set
041134 - out in Jennifer's letter on 100611. ref SDS A7 036C Jennifer called
041135 - back to ask if Millie wants UCSF or Kaiser to pay for her damages
041136 - caused by UCSF medical mistakes. ref SDS A7 PSSV Jennifer reported
041137 - delays communicating with Millie's medical team have delayed making
041138 - arrangements for Millie to start treatment recovering from UCSF
041139 - medical mistakes. ref SDS A7 OY4T She plans to call on Friday, 100618,
041140 - to report progress responding to Millie's claim. ref SDS A7 1K5J
041142 - ..
041143 - On 100618 0843 called Jennifer at Memeber Case Resolution Department
041144 - about progress responding to Millie's claim. ref SDS A8 036C
041146 - ..
041147 - On 100620 1112 letter to Kaiser claim team with copy to Medicare, and
041148 - the medical team requests call on Monday 100621, planned for previous
041149 - Friday, 100628, to report progress getting Millie treatment.
041150 - ref SDS A9 036C Recommends that delay communicating with medical team
041151 - that has delayed Millie starting treatment in time to be effective,
041152 - ref SDS A9 L59P, can be solved by hiring MD Anderson. ref SDS A9 L59X
041154 - ..
041155 - On 100621 0853 called for Jennifer and left several messages,
041156 - including for her team lead. ref SDS B1 036C Nobody had time today
041157 - for calling back. ref SDS B1 OP3N
041159 - ..
041160 - On 100622 1027 Jennifer called and advised that Doctor Johnson
041161 - responded to request for comment on Millie's claim saying he cannot
041162 - provide care for Millie because she entered Hospice on 100601,
041163 - ref SDS B3 036C; recommended Jennifer check Kaiser's medical chart for
041164 - Millie meeting with Doctor Johnson to see Millie was given no choices
041165 - except to enter Hospice in order to avoid further pain and suffering.
041166 - ref SDS B3 NX68
041168 - ..
041169 - On 100622 1511 letter to claim team and Medicare, and to Millie's
041170 - medical team confirming understanding in Jennifer's call that Millie's
041171 - medical team at Kaiser seems to refuse Millie standard of care to
041172 - recover from UCSF medical mistakes, because she was forced to enter
041173 - Hospice to get relief from pain caused by UCSF medical mistakes.
041174 - ref SDS B4 036C UCSF delays compounded Millie's injuries, pain, and
041175 - suffering; caution must be exercised to enable recovery, based on
041176 - Millie's right to life. ref SDS B4 575U Millie's patient history
041177 - shows the doctor's only issue, ref SDS B4 576V, is having time to
041178 - providing standard of care for Millie to recover from medical
041179 - mistakes, and if not, then Kaiser should assign someone who does.
041180 - ref SDS B4 583Y Kaiser has violated Millie's human rights; a woman's
041181 - right to choose life for herself, should be no less than the right to
041182 - choose for her unborn child, since the right to life and due process
041183 - are protected by the US Constitution. ref SDS B4 584W Kaiser can
041184 - easily solve the time problem by hiring other people to do the work,
041185 - and charging UCSF. ref SDS B4 585P
041187 - ..
041188 - 100624 1616 Jennifer called and asked to extend Kaiser's response to
041189 - Millie's claim another day or so, for review with her boss, and with
041190 - the customer. ref SDS B5 036C Jennifer the original date for Kaiser to
041191 - respond on 100610, required by statute, and then amended to today on
041192 - 100624, can be further amended, and cited unclear authority about 30
041193 - days instead of 14. ref SDS B5 EG5P Agreed that extending Kaiser's
041194 - response another few days until tomorrow, or Monday, is an acceptable
041195 - risk, even though Millie's cancer markier has increased significantly
041196 - to over 1000, and so that an equitable solution can be implented that
041197 - allows treatment in time to be effective for Millie. ref SDS B5 EG73
041198 - Jennifer will submit her draft response, and call tomorrow for
041199 - discussing Kaiser's solution. ref SDS B5 H98M
041201 - ..
041202 - On 100625 0852 letter to Kaiser and Medicare claim teams confirming
041203 - Kaiser's request to extend date for responding to Millie's claim
041204 - another few days until Monday in order to get comprehensive solution.
041205 - ref SDS B6 036C
041207 - ..
041208 - On 100626 0917 received letter from Cherry at Medicare, ref SDS B7
041209 - 036C, submitting CMS regulations, that control due date for Kaiser to
041210 - respond to Millie's claim. ref SDS B7 N64I
041212 - ..
041213 - On 100628 0228 letter to claim teams at Medicare and Kaiser asking how
041214 - CMS regulations received on 100625, apply to extend Kaiser's response
041215 - date for expediting Millie's recovery. ref SDS B8 036C
041217 - ..
041218 - On 100628 1033 called CMS Medicare for Beth Simone on regulations for
041219 - Kaiser to respond to Millie's claim.
041221 - ..
041222 - On 100628 2318 submitted record of telecon with CMS, ref SDS C0 036C,
041223 - and that CMS learned today that Kaiser changed Millie's claim to a
041224 - Grievance, and notified CMS that Kaiser intends to delay response
041225 - until 100710, to Millie's claim filed on 100527.
041227 - ..
041228 - On 100629 00003 received letter from Cherry transmitting Grievance
041229 - procedures, cited in the telecon yesterday as a change Kaiser made to
041230 - delay responding until 100710, to Millie's claim filed on 100527.
041231 - ref SDS C1 036C Review of Grievance regulations show Kaiser required
041232 - to make timely response based on patient health. ref SDS C1 PN5S
041234 - ..
041235 - On 100629 0013 letter thanks CMS for submitting regulations on
041236 - Grievance procedures, and notes requirements for Kaiser to respond
041237 - prior to maximum allowed of 30 days, based on patient health.
041238 - ref SDS C2 036C
041240 - ..
041241 - On 100629 1631 called Medicare (CMS) on results of their
041242 - teleconference with Kaiser on expediting response to Millie's claim.
041243 - ref SDS C3 036C
041245 - ..
041246 - On 100630 0027 Millie thanks Doctor Johnson for reporting on 100606,
041247 - that UCSF did not call Kaiser to provide care for Millie to recover
041248 - from UCSF medical mistakes. ref SDS C4 036C; she reports blood counts
041249 - are good, but cancer progressing because treatment was stopped on
041250 - 100601, for pain relief from chemotherapy. ref SDS C4 V83U Kaiser has
041251 - deferred responding to Millie's claim, ref SDS C4 V87S, and needs to
041252 - know how soon her health status requires Kaiser to make a response.
041253 - ref SDS C4 V88T Millie asks about deferring the meeting with Doctor
041254 - Johnson tomorrow, until Kaiser responds to Millie's claim, or, Millie
041255 - would love to meet, if Doctor Johnson has communicated with Doctor
041256 - Rugo on a work plan for Millie to recover from UCSF medical mistakes.
041257 - ref SDS C4 V89X
041259 - ..
041260 - On 100630 1148 Doctor Johnson notfies Millie, and the Kaiser claim
041261 - team that he is confused about Millie's case, because Kaiser has
041262 - deferred determination on urgent requirement for care. ref SDS C5 036C
041263 - Doctor Johnson notes Millie is in Hospice and states that Millie's
041264 - disease is resistant to all forms of therapy, and that entering
041265 - Hospice is based on patient desire to forego therapy. ref SDS C5 PY4J
041266 - He asks if Millie wants to dis-enroll from Hospice. ref SDS C5 OY5G
041267 - Doctor Johnson further notes that public domain email conflicts with
041268 - HIPAA regulations. ref SDS C5 0W5U
041270 - ..
041271 - On 100630 1537 Millie notified medical team and claim team, thanking
041272 - Doctor Johnson for his letter commenting on Millie feeling better
041273 - after ending chemotherap. Confirms Doctor Johnson's intent to defer
041274 - meeting scheduled for tomorrow until after Kaiser responds to Millie's
041275 - claim, and further confirms Doctor Johnson has still not communicated
041276 - with Doctor Rugo on UCSF providing care for Millie to recover from
041277 - UCSF medical mistakes. ref SDS C6 M86X Advises that Doctor Johnson's
041278 - assertion that Millie's cancer now resists all forms of therapy
041279 - conflicts with the record; Doctor Johnson advised that finding
041280 - effective treatment requires experimentation; Millie's first treatment
041281 - failed, and had to be switched. ref SDS C6 M87Q When UCSF discovered
041282 - medical mistakes, UCSF failed to provide necessary and reasonable care
041283 - for Millie to recover, and instead prescribed chemotherapy, which was
041284 - not effective and caused unbearable pain and suffering, causing Millie
041285 - to enter Hospice. ref SDS C6 M84P The only evident purpose for
041286 - Millie's death is to avoid accountability from medical mistakes and
041287 - avoid cost of recovery, by making Millie suffer, and making Medicare
041288 - pay, while Millie is actually innocent, and Medicare is innocent.
041289 - ref SDS C6 M84S Millie sent 44 letters to medical team requesting
041290 - targeted treatment to recover from UCSF medical mistakes, and
041291 - reporting pain and suffering from chemotherapy; so, on 100601, Millie
041292 - entered Hospice for pain relief for chemotherapy. ref SDS C6 M84Y
041293 - Millie cannot dis-enroll from Hospice providing pain medication until
041294 - Kaiser provides standard of care to recover from UCSF medical
041295 - mistakes. ref SDS C6 M93V Millie explains benefits to saving lives,
041296 - time, and money using public domain email. ref SDS C6 M94W Millie
041297 - notes Doctor Johnson's report today shows Kaiser has violated Medicare
041298 - regulations by delaying response to her claim longer than justified by
041299 - Millie's health status. ref SDS C6 M96P
041301 - ..
041302 - On 100701 0915 Carol called this morning saying she is the Chief of
041303 - Hospice and advised that she was told that Millie wants to dis-enroll
041304 - from Hospice. Millie sent a letter to the medical team, and claim
041305 - teams confirming understandings from the call with Carol. ref SDS C7
041306 - 036C Millie advised Carol that Millie entered Hospice for pain relief
041307 - for chemotherapy, and so she cannot dis-enroll from Hospice providing
041308 - pain medication until Kaiser provides standard of care to recover from
041309 - UCSF medical mistakes. ref SDS C7 Q85S Millie explains she wants a
041310 - written medical opinion on treatments lined up for her to recover from
041311 - UCSF medical mistakes that provides a "roadmap to a future worth
041312 - living." ref SDS C7 Q85Y
041314 - ..
041315 - On 100701 1140, meeting this morning scheduled during a prior meeting
041316 - at Kaiser on 100601, ref SDS 85 7E4S, was canceled because Doctor
041317 - Johnson's letter yesterday, said nothing about receiving instructions
041318 - from Kaiser's claims department on solving Millie's claim for care to
041319 - recover from UCSF medical mistakes, ref SDS C5 036C Since Doctor
041320 - Johnson was not authorized to provide care requested in Millie's claim
041321 - on 100527, ref SDS 81 IZ7N, meeting would jeperodize Millie's rights
041322 - in the case by adding or otherwise modifying her statement of claim.
041323 - ref SDS C8 036C
041325 - ..
041326 - On 100701 1213 Lois called and talked to Rod for explanation of
041327 - Millie's claim, and planned to talk with Doctor Johnson about a
041328 - resolution. ref SDS C9 036C
041330 - ..
041331 - On 100702 1424 Millie received letter from Doctor Johnson submitting
041332 - Kaiser's lab report on results of Millie's blood test on 100622, and
041333 - without comment except the doctor circled with ink CA 15-3 1116.
041334 - ref SDS D0 036C
041336 - ..
041337 - On 100702 1612 Lois called and reported discussing Millie's claim with
041338 - Doctor Johnson, who evidently indicated he cannot find on the Internet
041339 - a provider willing to treat Millie with PARP. ref SDS D1 036C Lois
041340 - asked to talk with Millie in order to verify what Millie wants in her
041341 - claim filed on 100527. Lois was referred to Millie's claim, and to
041342 - the letter to Kaiser on 100701, confirming Millie's telecon with
041343 - Carol, with the Kaiser Hospice program. ref SDS C7 036C
041345 - ..
041346 - On 100705 2050 planning letter to Kaiser and Medicare claim teams
041347 - asking for remedies for damanges caused by Kaiser delaying response to
041348 - Millie's request for urgent care. ref SDS D2 036C
041350 - ..
041351 - On 100708 0038 letter to Kaiser with copy to Medicare asking for
041352 - Millie's remedies for Kaiser delaying response to Millie's claim
041353 - requesting immedicate treatment to recover from UCSF medical mistakes.
041354 - ref SDS D4 036C
041356 - ..
041357 - On 100710 1343 Millie received a letter from Kaiser responding to her
041358 - claim. ref SDS D5 036C Kaiser says the office Millie was directed to
041359 - submit her claim to be held harmless from medical mistakes was
041360 - incorrect. ref SDS D5 X48S Kaiser advises that Doctor Johnson reports
041361 - Millie's patient hsitory makes getting treatment with PARP prescribed
041362 - by Doctor Rugo to recover from UCSF medical mistakes due to
041363 - "eligibility" issues. ref SDS D5 X45V The doctor feels Millie's cancer
041364 - is difficult to treat, and maintains nothing can help her recover from
041365 - UCSF medical mistakes without having tried a single treatment listed
041366 - in Millie's claim; Kaiser does not deny any request in Millie's claim,
041367 - but proposes she discuss her care directly with Doctor Johnson who
041368 - claims to have lost hope. ref SDS D5 X530 Kaiser apoligizes for taking
041369 - 44 days to respond to Millie's claim, because unnamed regulations give
041370 - Kaiser 30 days to respond. ref SDS D5 X547 Kaiser advises Millie can
041371 - dispute the determination through arbitration, but Kaiser does not
041372 - present a disputable issue. ref SDS D5 768G Kaiser advises that Millie
041373 - can appeal to Medicare. ref SDS D5 X54Q
041375 - ..
041376 - On 100713 0007 Millie requests reconsideration Kaiser's determination
041377 - on Millie's claim, ref SDS D6 036C, and appeals to Medicare for
041378 - compliance with CMS regulations. ref SDS D6 J74S
041380 - ..
041381 - On 100714 0742 Millie received copy of an internal letter Paula sent
041382 - notifying the Kaiser claim team that Millie's letter on 100713,
041383 - requests reconsideration and appeals to Medicare Kaiser's letter dated
041384 - 100708, and received on 100710, denying Millie's claim to recover from
041385 - medical mistakes filed on 100527. ref SDS D7 036C
041387 - ..
041388 - On 100715 1802 received securemail from Jennifer with response from
041389 - Kaiesr claim team, ref SDS D8 036C, to the letter on 100713, requesting
041390 - reconsideration and appealing, ref SDS D6 036C, Kaiser's letter dated
041391 - 100708, and received on 100710, ref SDS D5 036C, denying Millie's
041392 - claim filed on 100527. ref SDS 81 IZ7N
041394 - ..
041395 - On 100716 0830 called Beth at CMS (Medicare), ref SDS D9 036C, to
041396 - verify request on 100713 appealing to Medicare, ref SDS D6 J74S,
041397 - Kaiser's claim team letter dated 100708, received on 100710,
041398 - ref SDS D5 036C, denying Millie's appeal for standard of care to
041399 - recover from UCSF medical mistakes beginning with PARP. ref SDS 81
041400 - IZ7N; sent letter to Jullin at CMS asking if anything more needs to be
041401 - filed for Medicare to process Millie's request for appealing Kaiser's
041402 - denial of Millie's claim. ref SDS D9 07FC While hiking at Lafayette
041403 - Reservoir, received call from Paula at Kaiser claim team. Reception
041404 - was poor due to wind, so decided to call again at the house in a few
041405 - hours. ref SDS D9 D69K Received letter from Jullin saying Millie's
041406 - appeal is submitted to Medicare on Kaiser's denial of care.
041407 - ref SDS D9 07FC Paula called from Kaiser claim team, and this became a
041408 - conference call with CMS (Medicare) on advancing Millie's claim for
041409 - recovery from UCSF medical mistakes. ref SDS D9 PW3U
041411 - ..
041412 - On 100719 0522 Millie sent a letter to Doctor Johnson explaining
041413 - background on claim team, ref SDS 0 036C, suggestions for another
041414 - meeting. ref SDS 0 JH5V Millie notified the doctor that she wants a
041415 - written work plan from Kaiser on recovering from UCSF medical
041416 - mistakes. ref SDS 0 JH5Y She submits a draft to illustrate elements
041417 - of the work plan. ref SDS 0 JH8P Millie will meet with the doctor to
041418 - implment the work plan. ref SDS 0 JH4T
041419 -
041420 -
041421 -
041423 - ..
0415 -
0416 -
0417 - Progress
0418 -
041801 - Millie's letter to medical team with copy to Kaiesr and Medicare claim
041802 - teams says...
041803 -
041804 - 1. Subject: Recovery Plan - PARP Immediately, MD Anderson IBC Research Lab
041805 - Date: Mon, 19 Jul 2010 07:14:19 -0700
041821 - ..
041822 - 2. As you know, Jennifer responded in a letter dated 100708, and
041823 - received on Saturday, 100710, ref SDS D5 036C, to my claim
041824 - requesting to be held harmless from UCSF medical mistakes,
041825 - filed on 100527. ref SDS 81 IZ7N On Tuesday, 100713, Rod sent
041826 - a response to the medical team and claim team at Kaiser
041827 - objecting that Kaiser neither denied nor ordered relief on my
041828 - claim. ref SDS D6 036C I was disappointed. Rod appealed to
041829 - Medicare for assistance, because I feel time is running out.
041830 - ref SDS D6 J74S Then I had to put my cat down, because the vet
041831 - said at nearly 20, Sweetie had diabetes, and was suffering. It
041832 - was a tough week.
041834 - ..
041835 - 3. Finally, late Friday Paula called [...reported on 100716 0830.
041836 - ref SDS D9 PW3U...] You worked with her successfully on my
041837 - claim in 2007. During that call, the Medicare (CMS) team
041838 - called on my cell phone. So, Rod had a conference call using
041839 - speaker phones on the land line with Paula at Kaiser, and the
041840 - Medicare (CMS) folks on the cell phone. ref SDS D9 GR5K
041842 - ..
041843 - 4. Patty, Branch Manager at Medicare, feels Kaiser has not denied
041844 - my claim. ref SDS D9 JQ6L Rod explained that with time running
041845 - out Medicare should process my appeal, based on urgency of my
041846 - failing health status, as called out in Medicare regulations.
041847 - ref SDS D9 6P6L After discussion, Rod agreed to get more input
041848 - from you. ref SDS D9 EQ44 Patty said that if you cannot move
041849 - forward, then Medicare will consider my request for care is
041850 - "denied," and implement my Medicare appeal rights. ref SDS D9
041851 - M17N That's my understanding.
041853 - ..
041854 - 5. Paula asked what I want to be held harmless from UCSF mistakes?
041855 - ref SDS D9 EQ4G
041856 -
041857 - [On 100719 1413 Paula received copy of Millie's letter
041858 - to Doctor Johnson at Kaiser, ref SDS E1 E35I, and also
041859 - the doctor's letter demonstrating Kaiser's refusal to
041860 - perform, received on 100719 1312, ref SDS E0 036C, and
041861 - as a result, Paula filed another claim for Millie to
041862 - take posession of and process the claim to hold Millie
041863 - harmless from UCSF medical mistakes. ref SDS E1 4G4L
041865 - ..
041866 - 6. The first paragraph of my claim on 100527, asks Kaiser to
041867 - provide necessary and reasonable steps to implement Doctor
041868 - Rugo's work plan starting with PARP. ref SDS 81 IZ7N [...and
041869 - which has been requested in letters and meetings with Kaiser
041870 - and UCSF 44 times the past year, without action, reported in
041871 - case study on 100622 1511. ref SDS B4 576S...]
041873 - ..
041874 - 7. Since PARP is an oral agent, taking another pill along with
041875 - morphine, Decadron, and Coumadin, doesn't seem too difficult
041876 - for me to test response to further treatment. Step 2, on
041877 - treating my cancer as a chronic disease, as you have
041878 - prescribed, is to get a written medical opinion comparing
041879 - trade-offs on the other 20 or so agents listed in my claim.
041880 - ref SDS 81 X766
041882 - ..
041883 - 8. To shield you and Doctor Rugo from further burdens on your
041884 - time, Kaiser should arrange for a 2nd opinion by MD Anderson to
041885 - evaluate treatments after PARP, based on evidence from testing
041886 - my cancer cells in their IBC lab [...as set out in Millie's
041887 - claim on 100527 0217. ref SDS 81 X78S
041889 - ..
041890 - 9. So, I want a letter from you with the following work plan...
041892 - ..
041893 - 1. Dear Millie,
041895 - ..
041896 - 2. I have arranged with Doctor Rugo (or anyone) to Fed Ex you
041897 - PARP pills, with instructions. Since Doctor Rugo knows
041898 - your patient history well, listed from our meeting on
041899 - 090213. ref SDS 21 AC6G, she can resolve eligibility
041900 - issues, based on UCSF liability for medical mistakes in
041901 - your case, and her past practice of waiving eligibility
041902 - requirements based on your urgent medical necessity.
041903 - Typically, everyone is eligible for phase I trials, which
041904 - Doctor Rugo planned for you in the meeting on 090616.
041905 - ref SDS 37 BL4N
041906 -
041907 - [On 100719 1312 Kaiser proposes only another meeting to
041908 - "discuss next steps," and not to implement UCSF or any
041909 - alternate work plan for Millie to recover from UCSF
041910 - medical mistakes, and ignores Kaiser's fiduciary duty
041911 - to hold Millie harmless from UCSF medical mistakes
041912 - providing care on referral from Kaiser. ref SDS E0 036C
041914 - ..
041915 - [On 100719 1413 Paula received copy of Millie's letter
041916 - to Doctor Johnson at Kaiser, ref SDS E1 E35I, and also
041917 - the doctor's letter demonstrating Kaiser's refusal to
041918 - perform, received on 100719 1312, ref SDS E0 036C, and
041919 - as a result, Paula filed another claim for Millie to
041920 - take posession of and process the claim to hold Millie
041921 - harmless from UCSF medical mistakes. ref SDS E1 4G4L
041923 - ..
041924 - [On 100719 1312 at 2013 Millie read Kaiser's reponse on
041925 - 100708, to her claim filed on 100708, and burst into
041926 - tears, saying erroneous account of entering Hospice on
041927 - 100601 breaks her heart, ref SDS E0 RM9G; Millie feels
041928 - now that her request for treatment cannot be approved
041929 - in time for her to recover, ref SDS E0 RM62, and the
041930 - only way to correct Kaiser's conduct is to file a claim
041931 - monetary damages for wrongful death. ref SDS E0 RN3L
041933 - ..
041934 - 3. I have talked to Doctor "so and so" at the MD Anderson IBC
041935 - Laboratory. He has agreed to see you this week for testing
041936 - your cancer to determine care after PARP. Our travel
041937 - department will call you later today or tomorrow on making
041938 - exigent arrangements for you and Rod to visit MD Anderson.
041940 - ..
041941 - 4. I have further arranged for our accounting department to
041942 - review expenses attributed to recovering from UCSF medical
041943 - mistakes. They will contact you within 2 weeks, to compare
041944 - notes on the amount we owe to hold you harmless.
041946 - ..
041947 - 5. As I have said, your cancer is resistant to treatment, so
041948 - prospects at this point in time are less promising than a
041949 - year ago, when Doctor Rugo first proposed the work plan.
041950 - This is the best we can do to hold you harmless from UCSF
041951 - medical mistakes by providing a road map to a future worth
041952 - living.
041954 - ..
041955 - 6. Please let me know if you choose to implement our plan, and
041956 - I will change your status in the computer on Hospice care.
041957 - I will further talk to the Hospice people about continuing
041958 - weekly visits with Linda, because I feel at this stage I
041959 - need weekly reports on your progress, and Linda has proven
041960 - effective in evaluating your pain medications.
041962 - ..
041963 - 7. After demonstrating performance to resolve your claim, we
041964 - can meet later this week to discuss details that may need
041965 - clarification. Even if you decide to stay in Hospice, I
041966 - would love for you to come in see me, as planned in our
041967 - meeting on 100601.
041969 - ..
041970 - 8. I saw the video modeling your new dress, and am grateful
041971 - that you seem to be doing so well, despite everything that
041972 - has happened.
041974 - ..
041975 - 9. Sincerely,
041976 -
041983 - ..
041984 - 10. If you are unable to get authorization to issue a letter along
041985 - these lines, please let me know immediately, so that efforts
041986 - can continue to provide authority you need to proceed.
041988 - ..
041989 - 11. By copy, I am notifying Paula at Kaiser, and the Medicare (CMS)
041990 - review team that this letter to Doctor Johnson intends to
041991 - implement understandings from the call this past Friday [...on
041992 - 100716 0830. ref SDS D9 EQ44...] I further thank everyone for
041993 - working hard to resolve this matter equitably and quickly,
041994 - based on my deteriorating health status, due to lack of
041995 - treatment the past year, despite Doctor Rugo's report on
041996 - 090616, that "everybody at Kaiser and UCSF is on board."
041997 -
042005 -
042006 -
042007 -
042008 -
042009 -
042010 -
042011 -
042012 -
042013 -
042014 -
042015 -
0421 -