THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: June 3, 2010 11:12 AM Thursday; Rod Welch

Linda called to schedule meeting for Millie with Hospice social rep.

1...Summary/Objective


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CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS A1 0000. ref SDS A0 0000.
040502 -
040503 -
040504 -
040505 -
040507 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 010427 0830 meeting at Kaiser - Doctor Johnson notes Millie looks
040902 - so good nobody can believe she has such severe cancer, ref SDS 83
040903 - OJ6I; the doctor explained again Millie's cancer has mutated through
040904 - 11 relapses to resist chemotherapy.  The doctor advised that Kaiser
040905 - has a new strategy prescribing therapy that is effective for treating
040906 - cancer as a chronic disease by "targeting" the genetic profile of
040907 - cancer that has mutated in patients, like Millie, to resist
040908 - chemotherapy. ref SDS 83 SJ6N
040910 -  ..
040911 - On 100501 1037 Millie letter to medical team confirms understanding of
040912 - new strategy to treat Millie's cancer with targeted therapy.
040913 - ref SDS 84 F25O
040915 -  ..
040916 - On 100501 2017 Doctor Rugo reports plans to collaborate with Doctor
040917 - Johnson at Kaiser on work plan for Millie to recover from 11th relapse
040918 - of cancer caused by UCSF medical mistakes. ref SDS 85 HH4I
040920 -  ..
040921 - On 100502 2143 Kaiser confirms that some patients respond well to new
040922 - "targeted" therapies. ref SDS 87 YX8L  Kaiser contends that all of the
040923 - strategies for "targeted" therapies have been executed for Millie,
040924 - which seems conflicting with the record in this case. ref SDS 87 MZ4N
040926 -  ..
040927 - On 100503 1522 Millie notifies medical team that time of the essence
040928 - to get the next treatment going. ref SDS 88 TD5W
040930 -  ..
040931 - On 100503 1945 Kaiser notifies Millie to get remaining 2 treatments
040932 - with Abraxane chemotherapy that seems to be failing, and then after 3
040933 - more weeks without treatment, following a trip abroad, the doctor will
040934 - discuss "next steps." ref SDS 89 YL5N
040936 -  ..
040937 - On 100503 2338 Millie reports to medical team that she will implement
040938 - Kaiser's guidance to delay changing treatments, and takes Kaiser's
040939 - letter on 010503, as assurance that recovery will be equal to changing
040940 - treatment immediately on 100505. ref SDS 90 6X7S
040942 -  ..
040943 - On 100504 1609 Sara, Practice Manager for the UCSF Oncology Breast
040944 - Care Clinic, called and notified Millie that Doctor Rugo will soon
040945 - communicate with Doctor Johnson, or had already done so, to coordinate
040946 - with Kaiser on planning Millie's next treatment to recover from the
040947 - 11th relapse of cancer. ref SDS 91 NT5N
040949 -  ..
040950 - On 010505 0730 Millie received the 2nd treatment at Kaiser for the 3rd
040951 - cycle of Abraxane chemotherapy, as ordered by Doctor Johnson.
040952 - ref SDS 92 KE4K
040954 -  ..
040955 - On 100511 0900 cancer marker CA 15-3 520 increased another 100 points,
040956 - seemingly on an accelerating rise, which threatens to cascade out of
040957 - control, because Abraxane chemotherapy is not effective. ref SDS 93
040958 - L54I
040960 -  ..
040961 - On 100512 0730 Millie received 3rd treatment for 3rd cycle of
040962 - Abraxane. ref SDS 94 KE4K
040964 -  ..
040965 - On 100515 1415 Millie departed 2-week trip to Europe. ref SDS 95 PK9O
040967 -  ..
040968 - On 100527 0217 Millie files claim with Kaiser Claims Resolution
040969 - Department for standard of care to recover from 11th relapse of cancer
040970 - caused by medical mistakes getting radiation treatments at UCSF on
040971 - referral from Kaiser. ref SDS 96 IZ7N
040973 -  ..
040974 - On 100528 0322 Millie requests support from Medicare to separate
040975 - recovery for medical mistakes getting radiation from UCSF, from health
040976 - care benefits limited by Medicare insurance coverage. ref SDS 97 QQ6N
040978 -  ..
040979 - On 100528 1031 called Medicare they have formed a team to review
040980 - Millie's case, and contacted Kaiser's Claims Resolution Department for
040981 - response to Millie's claim. ref SDS 98 4W5F
040983 -  ..
040984 - 100601 0830 Doctor Johnson reported that Kaiser has not had time to
040985 - collaborate with UCSF on treatment for Millie to recover from UCSF
040986 - medical mistakes.  He discussed treating Millie with MPA, but this was
040987 - not prescribed because Millie was treated with MPA in 2009, and UCSF
040988 - ended the treatment due to fears about blood clot side effects, which
040989 - were believed to cause breathing problems Millie had, though later
040990 - breathing problems were discovered to be caused by defective radiation
040991 - treatment.  Since Doctor Johnson said Kaiser has no more treatments
040992 - for Millie, the only way Millie can get relief from pain caused by
040993 - cancer that is progressing without treatment is get treatment in
040994 - Hospice.  Since Hospice is the only choice of care offered today,
040995 - Millie accepted this.
040997 -  ..
040998 - On 100601 1531 Sharon called to schedule starting Hospice medical
040999 - services beginning tomorrow between 0900 - 1000. ref SDS A0 036C
041001 -  ..
041002 - On 100602 0913 Liz provides orientation on Hospice care; she confirms
041003 - Sharon's report yesterday, that if Kaiser performs on the insurance
041004 - agreement to provide standard of care for Millie's patient profile,
041005 - than Millie can elect to recover from 11th relapse of cancer, rather
041006 - than continue with Hospice support for dying peacefully. ref SDS A1
041007 - 036C
041009 -  ..
041010 - On 100602 1046 Diane received notice from Medicare to file claim for
041011 - Millie to get treatment for recovering from UCSF medical mistakes; she
041012 - is preparing a statement of claim. ref SDS A2 036C  Advised Diane to
041013 - use Millie's statement of claim submitted to Kaiser on 100527.
041014 - ref SDS A2 MZ5H  Eileen called later and reported that Kaiser denied
041015 - Millie's claim on the grounds that Medicare does not authorize payment
041016 - for treatment to recover from cancer, after a patient starts Hospice.
041017 - ref SDS A2 UN4M  Requested that Eileen read he claim and then make a
041018 - good faith determiantion. ref SDS A2 I33H  Eileen called back after
041019 - reading the claim and advised the denial of claim has been withdrawn,
041020 - and the matter is referred to Claims Resolution Department.
041021 - ref SDS A2 UN5P
041023 -  ..
041024 - On 100603 1112 Linda called to schedule a visit for Hospice social
041025 - support. ref SDS 0 036C
041026 -
041027 -
041029 -  ..
0411 -
0412 -
0413 - Progress
0414 -
041401 - Linda is Millie's social care giver assigned through Hospice.
041402 -
041403 - Millie was sleeping.
041405 -  ..
041406 - Linda's schedule is booked this week, and she is off work next week.
041407 - She plans to have a colleague fill-in to do social worker orientation
041408 - meeting next week.
041410 -  ..
041411 - Discussed "social" experiment providing Communication Metrics to
041412 - Hospice care.  Explained working with Liz yesterday showed potential
041413 - efficiencies using public domain email, reported on 100602 0913,
041414 - ref SDS A1 3W6L
041416 -  ..
041417 - Related problems Doctor Johnson and Doctor Rugo are having using the
041418 - computer, the Internet (email), and the telephone for case management,
041419 - reported in the meeting at Kaiser on Tuesday, 100601 0830. ref SDS 99
041420 - 4F6I
041422 -  ..
041423 - Linda seems to concur that better balance is needed between patients
041424 - right to confidential health records, and patient right to health with
041425 - efficient communcation using public domain email, as set out in
041426 - Millie's letter to Doctor Rugo on 100502 0140. ref SDS 86 CO3W
041428 -  ..
041429 - Linda noted that most communications in email need not include
041430 - personal identity information.
041432 -  ..
041433 - During the call, sent a letter to Linda transmitting the letter to
041434 - the medical team yesterday, so she can review with her Hospice
041435 - mangement how to meet Millie's right to health by waiving right to
041436 - totally confidential communications....
041437 -
041438 -    1.  Subject:  Cancer 11th Relapse Work Plan - Hospice Started
041439 -        Date: Thu, 03 Jun 2010 11:30:54 -0700
041446 -         ..
041447 -    2.  Per your telecon with Rod, here is the letter that went to the
041448 -        medical team this morning [...reported on 100603 0449.
041449 -        ref SDS A3 036C...], confirming understandings from recent work
041450 -        with Kaiser on my care [...meeting with Doctor Johnson on
041451 -        100601 0830. ref SDS 99 036C...], including telecon with Sharon
041452 -        [...in Hospice on 100601 1531. ref SDS A0 036C...], and the
041453 -        meeting with Liz yesterday [...reported on 100602 0913.
041454 -        ref SDS A1 036C...].
041456 -         ..
041457 -    3.  Please take a look, and lets see if we can communicate
041458 -        constructively.
041459 -
041465 -
041466 -
041467 -
041468 -
041469 -
041470 -
0415 -