CONTACTS 

SUBJECTS
Thanks Always Being There Extend End of Road Few Cards Left Play Sin
History

1304 -
1304 -    ..
1305 - Summary/Objective
1306 -
130601 - Follow up ref SDS 9 0000. ref SDS 8 0000.
130602 -
130603 -
130604 -
130605 -
130607 -  ..
1307 -
1308 -
1309 - Background
1310 -
131001 - On 010427 0830 meeting at Kaiser - Doctor Johnson notes Millie looks
131002 - so good nobody can believe she has such severe cancer, ref SDS 6
131003 - OJ6I; the doctor explained again Millie's cancer has mutated through
131004 - 11 relapses to resist chemotherapy.  The doctor advised that Kaiser
131005 - has a new strategy prescribing therapy that is effective for treating
131006 - cancer as a chronic disease by "targeting" the genetic profile of
131007 - cancer that has mutated in patients, like Millie, to resist
131008 - chemotherapy. ref SDS 6 SJ6N
131010 -  ..
131011 - On 100501 1037 Millie letter to medical team confirms understanding of
131012 - new strategy to treat Millie's cancer with targeted therapy.
131013 - ref SDS 7 F25O
131015 -  ..
131016 - On 100501 2017 Doctor Rugo reports plans to collaborate with Doctor
131017 - Johnson at Kaiser on work plan for Millie to recover from 11th relapse
131018 - of cancer caused by UCSF medical mistakes. ref SDS 8 HH4I
131020 -  ..
131021 - On 100502 2143 Kaiser confirms that some patients respond well to new
131022 - "targeted" therapies. ref SDS 9 YX8L  Kaiser contends that all of the
131023 - strategies for "targeted" therapies have been executed for Millie,
131024 - which seems conflicting with the record in this case. ref SDS 9 MZ4N
131026 -  ..
131027 - On 100503 1522 Millie notifies medical team that time of the essence
131028 - to get the next treatment going. ref SDS 10 TD5W
131030 -  ..
131031 - On 100503 1945 Kaiser notifies Millie to get remaining 2 treatments
131032 - with Abraxane chemotherapy that seems to be failing, and then after 3
131033 - more weeks without treatment, following a trip abroad, the doctor will
131034 - discuss "next steps." ref SDS 11 YL5N
131036 -  ..
131037 - On 100503 2338 Millie reports to medical team that she will implement
131038 - Kaiser's guidance to delay changing treatments, and takes Kaiser's
131039 - letter on 010503, as assurance that recovery will be equal to changing
131040 - treatment immediately on 100505. ref SDS 12 6X7S
131042 -  ..
131043 - On 100504 1609 Sara, Practice Manager for the UCSF Oncology Breast
131044 - Care Clinic, called and notified Millie that Doctor Rugo will soon
131045 - communicate with Doctor Johnson, or had already done so, to coordinate
131046 - with Kaiser on planning Millie's next treatment to recover from the
131047 - 11th relapse of cancer. ref SDS 13 NT5N
131049 -  ..
131050 - On 010505 0730 Millie received the 2nd treatment at Kaiser for the 3rd
131051 - cycle of Abraxane chemotherapy, as ordered by Doctor Johnson.
131052 - ref SDS 14 KE4K
131054 -  ..
131055 - On 100511 0900 cancer marker CA 15-3 520 increased another 100 points,
131056 - seemingly on an accelerating rise, which threatens to cascade out of
131057 - control, because Abraxane chemotherapy is not effective. ref SDS 15
131058 - L54I
131060 -  ..
131061 - On 100512 0730 Millie received 3rd treatment for 3rd cycle of
131062 - Abraxane. ref SDS 16 KE4K
131064 -  ..
131065 - On 100515 1415 Millie departed 2-week trip to Europe. ref SDS 17 PK9O
131067 -  ..
131068 - On 100527 0217 Millie files claim with Kaiser Claims Resolution
131069 - Department for standard of care to recover from 11th relapse of cancer
131070 - caused by medical mistakes getting radiation treatments at UCSF on
131071 - referral from Kaiser. ref SDS 18 IZ7N
131073 -  ..
131074 - On 100528 0322 Millie requests support from Medicare to separate
131075 - recovery for medical mistakes getting radiation from UCSF, from health
131076 - care benefits limited by Medicare insurance coverage. ref SDS 19 QQ6N
131078 -  ..
131079 - On 100528 1031 called Medicare they have formed a team to review
131080 - Millie's case, and contacted Kaiser's Claims Resolution Department for
131081 - response to Millie's claim. ref SDS 20 4W5F
131083 -  ..
131084 - On 100601 0136 Millie submitted agenda to medical team for meeting
131085 - with Doctor Johnson at Kaiser on the work plan for Millie to recover
131086 - from UCSF medical mistakes. ref SDS 7 QQ6N
131088 -  ..
131089 - On 100601 0830 Doctor Johnson reported that Kaiser has not had time to
131090 - collaborate with UCSF on treatment for Millie to recover from UCSF
131091 - medical mistakes.  He discussed treating Millie with MPA, but this was
131092 - not prescribed because Millie was treated with MPA in 2009, and UCSF
131093 - ended the treatment due to fears about blood clot side effects, which
131094 - were believed to cause breathing problems Millie had, though later
131095 - breathing problems were discovered to be caused by defective radiation
131096 - treatment.  Since Doctor Johnson said Kaiser has no more treatments
131097 - for Millie, the only way Millie can get relief from pain caused by
131098 - cancer that is progressing without treatment is get treatment in
131099 - Hospice.  Since Hospice is the only choice of care offered today,
131100 - Millie accepted this. ref SDS 8 036C
131102 -  ..
131103 - On 100601 1525 Millie received a letter from Arlette who works with
131104 - Doctor Johnson at Kaiser and expressing sympathy on learning that
131105 - Kaiser offered Millie no choices for treatment to recover from 11th
131106 - relapse of cancer, and so Millie was forced to choose Hospice for
131107 - medication to prevent agonizing pain from chemotherapy that is not
131108 - effective for Millie's patient profile. ref SDS 9 036C
131110 -  ..
131111 - On 100603 0603 Millie responds thanking Arlette for always being there
131112 - at Kaiser to help Millie solve difficult problems getting things done.
131113 - ref SDS 0 036C
131114 -
131115 -
131116 -
131117 -
131119 -  ..
1312 -
1313 -
1314 - Progress
1315 -
131501 - Millie sent a letter responding to Arlette...
131502 -
131503 -    1.  Subject: Thanks for Always Being There
131504 -        Date: Thu, 03 Jun 2010 06:38:41 -0700
131511 -         ..
131512 -    2.  Thanks for your truly lovely letter on Tuesday [...received
131513 -        yesterday on 100602 1525. ref SDS 23 036C...]. and especially
131514 -        for stopping in Doctor Johnson's office earlier in the morning.
131515 -        ...[on 100601 0830, ref SDS 22 PV4L...].
131517 -         ..
131518 -    3.  My heart really went out for you describing the "real estate
131519 -        agent from hell," who dropped the ball on everything, and left
131520 -        you in the lurch. 100601 0830, ref SDS 22 PV56  Sounds like
131521 -        your support group has helped get you on the road to recovery.
131522 -        Hope your cats are adjusting well to their new home?? 100601
131523 -        0830, ref SDS 22 977W
131525 -         ..
131526 -    4.  You are right in your letter that I am coming to the end of the
131527 -        road.  In 2004, I learned treatment had been delayed for 18
131528 -        months.  Doctor Johnson said to get my affairs in order,
131529 -        because Hospice was my next stop. [...reported on 040614 1130,
131530 -        ref SDS 1 QH8F...]  He went to work and somehow we got past
131531 -        it, due in no small part to your help.
131533 -         ..
131534 -    5.  Since then we seem to have a glitch every year, where Hospice
131535 -        comes up.  In 2007, Doctor Rugo told me that... "Kaiser has cut
131536 -        you loose" [...reported on 071018 0800, ref SDS 2 W23I...].
131537 -        Last June in 2009, Doctor Rugo laid out a road map for a future
131538 -        worth living, saying everybody is on board [...reported on
131539 -        090616 1245. ref SDS 3 D647...].  Somehow the wheels came off,
131540 -        and suddenly everybody was missing in action.  Seems like this
131541 -        time UCSF has "cut me loose," [...reported by Doctor Johnson on
131542 -        090909 1344. ref SDS 4 QX88; again on 091112 0930. ref SDS 5
131543 -        A94I, and still again 2 days ago on 100601 0830. ref SDS 22
131544 -        4F6I...], like your real estate agent did to you [...reported
131545 -        by Arlette on 100601 0830. ref SDS 22 PV56...].  I know Doctor
131546 -        Johnson has tried his best, but my case seems to overwhelm
131547 -        everyone. [...reported on 100601 0830. ref SDS 22 4G6M...]
131549 -         ..
131550 -    6.  So, now I am at the table with few cards left to play.  If my
131551 -        "nine lives" are up (speaking of cats), hopefully lessons
131552 -        learned can help the next gal who shows up with a weird cancer.
131553 -
131554 -            [On 100803 1212 letter from Arlette asks why Millie had to
131555 -            die, what was done that should not have been done, and what
131556 -            was not done that should have been done. ref SDS 24 4R3G
131558 -         ..
131559 -    7.  I am pleased to say thanks for always being there for me, and
131560 -        for so many others.  In the chemo chair getting treatment, I
131561 -        hear lots of chatter, and invariably someone is saying "Oh,
131562 -        Arlette fixed this," and "Arlette saved my bacon..."  I know at
131563 -        UCSF, you're the one person they counted on to get things done
131564 -        collaborating with Kaiser on my care.
131565 -
131566 -            [On 101110 2025 letter to Arelette reports at Costco seeing
131567 -            Sharee from the Chemo Clinic, and saying again how much
131568 -            Millie loved and respected her many care givers.
131569 -            ref SDS 25 U19R
131571 -         ..
131572 -    8.  Again, very glad you are now in a better place than a week ago.
131573 -        Good luck in your new apartment.  I'm rooting for you to land a
131574 -        great foreclosure deal. [...reported on 100601 0830,
131575 -        ref SDS 22 977W
131576 -
131577 -            [On 101110 2025 letter to Arlette asks how she is doing in
131578 -            her new apartment. ref SDS 25 U19X
131580 -         ..
131581 -    9.  Hooray for the good guys!!!
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1316 -