Welch Company
San Francisco, CA


S U M M A R Y


DIARY: June 2, 2010 03:25 PM Wednesday; Rod Welch

Arlette sympathy letter to Millie ending treatment recover from cancer.

1...Summary/Objective


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CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS A1 0000. ref SDS 84 0000.
040502 -
040503 -
040505 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 010427 0830 meeting at Kaiser - Doctor Johnson notes Millie looks
040902 - so good nobody can believe she has such severe cancer, ref SDS 84
040903 - OJ6I; the doctor explained again Millie's cancer has mutated through
040904 - 11 relapses to resist chemotherapy.  The doctor advised that Kaiser
040905 - has a new strategy prescribing therapy that is effective for treating
040906 - cancer as a chronic disease by "targeting" the genetic profile of
040907 - cancer that has mutated in patients, like Millie, to resist
040908 - chemotherapy. ref SDS 84 SJ6N
040910 -  ..
040911 - On 100501 1037 Millie letter to medical team confirms understanding of
040912 - new strategy to treat Millie's cancer with targeted therapy.
040913 - ref SDS 85 F25O
040915 -  ..
040916 - On 100501 2017 Doctor Rugo reports plans to collaborate with Doctor
040917 - Johnson at Kaiser on work plan for Millie to recover from 11th relapse
040918 - of cancer caused by UCSF medical mistakes. ref SDS 86 HH4I
040920 -  ..
040921 - On 100502 2143 Kaiser confirms that some patients respond well to new
040922 - "targeted" therapies. ref SDS 88 YX8L  Kaiser contends that all of the
040923 - strategies for "targeted" therapies have been executed for Millie,
040924 - which seems conflicting with the record in this case. ref SDS 88 MZ4N
040926 -  ..
040927 - On 100503 1522 Millie notifies medical team that time of the essence
040928 - to get the next treatment going. ref SDS 89 TD5W
040930 -  ..
040931 - On 100503 1945 Kaiser notifies Millie to get remaining 2 treatments
040932 - with Abraxane chemotherapy that seems to be failing, and then after 3
040933 - more weeks without treatment, following a trip abroad, the doctor will
040934 - discuss "next steps." ref SDS 90 YL5N
040936 -  ..
040937 - On 100503 2338 Millie reports to medical team that she will implement
040938 - Kaiser's guidance to delay changing treatments, and takes Kaiser's
040939 - letter on 010503, as assurance that recovery will be equal to changing
040940 - treatment immediately on 100505. ref SDS 91 6X7S
040942 -  ..
040943 - On 100504 1609 Sara, Practice Manager for the UCSF Oncology Breast
040944 - Care Clinic, called and notified Millie that Doctor Rugo will soon
040945 - communicate with Doctor Johnson, or had already done so, to coordinate
040946 - with Kaiser on planning Millie's next treatment to recover from the
040947 - 11th relapse of cancer. ref SDS 92 NT5N
040949 -  ..
040950 - On 010505 0730 Millie received the 2nd treatment at Kaiser for the 3rd
040951 - cycle of Abraxane chemotherapy, as ordered by Doctor Johnson.
040952 - ref SDS 93 KE4K
040954 -  ..
040955 - On 100511 0900 cancer marker CA 15-3 520 increased another 100 points,
040956 - seemingly on an accelerating rise, which threatens to cascade out of
040957 - control, because Abraxane chemotherapy is not effective. ref SDS 94
040958 - L54I
040960 -  ..
040961 - On 100512 0730 Millie received 3rd treatment for 3rd cycle of
040962 - Abraxane. ref SDS 95 KE4K
040964 -  ..
040965 - On 100515 1415 Millie departed 2-week trip to Europe. ref SDS 96 PK9O
040967 -  ..
040968 - On 100527 0217 Millie files claim with Kaiser Claims Resolution
040969 - Department for standard of care to recover from 11th relapse of cancer
040970 - caused by medical mistakes getting radiation treatments at UCSF on
040971 - referral from Kaiser. ref SDS 97 IZ7N
040973 -  ..
040974 - On 100528 0322 Millie requests support from Medicare to separate
040975 - recovery for medical mistakes getting radiation from UCSF, from health
040976 - care benefits limited by Medicare insurance coverage. ref SDS 98 QQ6N
040978 -  ..
040979 - On 100528 1031 called Medicare they have formed a team to review
040980 - Millie's case, and contacted Kaiser's Claims Resolution Department for
040981 - response to Millie's claim. ref SDS 99 4W5F
040983 -  ..
040984 - On 100601 0136 Millie submitted agenda to medical team for meeting
040985 - with Doctor Johnson at Kaiser on the work plan for Millie to recover
040986 - from UCSF medical mistakes. ref SDS A0 QQ6N
040988 -  ..
040989 - On 100601 0830 Doctor Johnson reported that Kaiser has not had time to
040990 - collaborate with UCSF on treatment for Millie to recover from UCSF
040991 - medical mistakes.  He discussed treating Millie with MPA, but this was
040992 - not prescribed because Millie was treated with MPA in 2009, and UCSF
040993 - ended the treatment due to fears about blood clot side effects, which
040994 - were believed to cause breathing problems Millie had, though later
040995 - breathing problems were discovered to be caused by defective radiation
040996 - treatment.  Since Doctor Johnson said Kaiser has no more treatments
040997 - for Millie, the only way Millie can get relief from pain caused by
040998 - cancer that is progressing without treatment is get treatment in
040999 - Hospice.  Since Hospice is the only choice of care offered today,
041000 - Millie accepted this. ref SDS A1 036C
041002 -  ..
041003 - On 100601 1525 Millie received a letter from Arlette who works with
041004 - Doctor Johnson at Kaiser and expressing sympathy on learning that
041005 - Kaiser offered Millie no choices for treatment to recover from 11th
041006 - relapse of cancer, and so Millie was forced to choose Hospice for
041007 - medication to prevent agonizing pain from chemotherapy that is not
041008 - effective for Millie's patient profile. ref SDS 0 036C
041009 -
041010 -
041011 -
041013 -  ..
0411 -
0412 -
0413 - Progress
0414 -
041401 - Millie received a letter from Arlette...
041402 -
041403 -    1.  Subject: Re: Cancer 11th Relapse Work Plan
041404 -        Date: Tue, 1 Jun 2010 16:47:42 -0700
041411 -         ..
041412 -    2.  Doctor Johnson told me he put you on hospice today.  I am sorry
041413 -        we have come to the end of the line for you.  We sure had a
041414 -        good run, though, didn't we? [...referencing the meeting at
041415 -        Kaiser yesterday on 100601 0830, ref SDS A1 4H3K; Arlette does
041416 -        not mention brief meeting with Millie in Doctor Johnson's
041417 -        examination room, also yesterday on 100601 0830. ref SDS A1
041418 -        PV4L...]
041419 -
041420 -            [On 100603 0603 Millie's letter thanks Arlette for always
041421 -            being there for her helping with her care at Kaiser, and
041422 -            wishes Arlette well recovering from difficulties losing her
041423 -            home, and getting resettled. ref SDS A6 036C
041425 -         ..
041426 -    3.  I love you and Rod and have enjoyed so much being a part of
041427 -        your life and care.  You are exceptional.!  Doctor Johnson said
041428 -        I will see you in a month.  I look forward to that.  In the
041429 -        meantime, if you need anything please call me.  Love you Mil!!
041430 -
041431 -            [On 100803 1212 lovely letter from Arlette asking why
041432 -            Millie had to die - what was done that should not have been
041433 -            done, and what was not done that should have been done.
041434 -            ref SDS A9 4R3G  Arlette relates again caring deeply for
041435 -            Millie. ref SDS A9 SK4V
041437 -             ..
041438 -            [On 101110 2025 letter to Arelette reports at Costco seeing
041439 -            Sharee from the Chemo Clinic, and saying again how much
041440 -            Millie loved and respected her many care givers.
041441 -            ref SDS B0 U19R
041442 -
041455 -
041456 -
041457 -
041458 -
041459 -
041460 -
041461 -
0415 -