CONTACTS 

SUBJECTS
CA 15-3 520 Kaiser Lab 100511 Cancer Marker Rises Highest Patient Hi

0803 -
0803 -    ..
0804 - Summary/Objective
0805 -
080501 - Follow up ref SDS 29 0000. ref SDS 28 0000.
080502 -
080503 -
080504 -
080505 -
080506 -
080508 -  ..
0806 -
0807 -
0808 - Background
0809 -
080901 - On 100501 1037 Millie sent a letter to the medical team asking for a
080902 - work plan to recover from the 11th relapse, caused by UCSF medical
080903 - mistakes providing radiation services on referral from Kaiser, which
080904 - have caused her cancer to spread. ref SDS 17 F25O
080906 -  ..
080907 - On 100501 2017 Millie received letter from Doctor Rugo saying she will
080908 - communicate with Doctor Johnson at Kaiser on the work plan for Millie
080909 - to recover from the 11th relapse of cancer. ref SDS 18 HH4I
080911 -  ..
080912 - On 100502 0140 Millie responds to Doctor Rugo's letter reporting
080913 - commitment to communicate with Doctor Johnson at Kaiser on the work
080914 - plan for Millie to recover from 11th relapse of cancer. ref SDS 19
080915 - HH4I
080917 -  ..
080918 - On 100502 0140 Millie responds to Doctor Rugo's letter reporting
080919 - commitment to communicate with Doctor Johnson at Kaiser on the work
080920 - plan for Millie to recover from 11th relapse of cancer. ref SDS 19
080921 - HH4I
080923 -  ..
080924 - On 100503 1522 Millie notifies medical team of difficulty using Kaiser
080925 - secure email; asks about getting treatment with Abraxane chemotherapy
080926 - scheduled for Wednesday, 100505, or switching to a "targeted" agent.
080927 - ref SDS 20 HH4I
080929 -  ..
080930 - On 100503 1945 Millie receives letter from Kaiser saying to continue
080931 - with Abraxane chemotherapy for 2 more treatments, and then after 2
080932 - weeks without treatment the doctor will discuss next steps in a
080933 - meeting at Kaiser. ref SDS 21 HH4I
080935 -  ..
080936 - On 100503 2338 Millie notifies medical team that Kaiser guidance will
080937 - be implemented to get 2 treatments that complete 3rd cycle of
080938 - Abraxane, ref SDS 22 HH4I,
080940 -  ..
080941 - On 100504 1609 Sara, Practice Manager for Breast Care Clinic, called
080942 - to confirm Doctor Rugo plans to call Kaiser about developing a work
080943 - plan for Millie to recover from 11th relapse of cancer caused by UCSF
080944 - medical mistakes. ref SDS 23 NT5N  Sara asked Millie if she has other
080945 - concerns; Millie concerned about getting response from medical team on
080946 - comparing treatment trade-offs pending for a year. ref SDS 23 FK9I
080947 - Reviewed UCSF medical mistakes, and pending issues. ref SDS 23 NT99
080948 - Sara investigating patients right to use public domain email for
080949 - expediting communications with medical team. ref SDS 23 ZV6M
080951 -  ..
080952 - On 100505 0411 Millie letter to medical team on UCSF investigating
080953 - medical mistakes to expedite recovery from 11th relapse of cancer.
080954 - ref SDS 24 NT5N
080956 -  ..
080957 - On 100511 0800, Millie had a blood test at Kaiser in Martinez.
080958 - ref SDS 25 AS5H
080960 -  ..
080961 - On 100513 1422 called Arlette this morning to get results of the
080962 - cancer marker for Millie's blood test on 100511, because these results
080963 - are not posted on Kaiser's Knowledge Mangement system for customers.
080964 - ref SDS 25 NK7F  Arlette called later with results.  Millie received a
080965 - letter in the afternoon from Arlette confirming her cancer marker has
080966 - increased to an all time high, saying CA 15-3 520. ref SDS 26 IZ7N
080968 -  ..
080969 - On 100527 0217 completed writing a claim to Kaiser Claims Resolution
080970 - Department, asking Paula to secure immedicate treatment for Millie
080971 - because her cancer marker shows he disease has increased to the
080972 - highest level in patient history, and that recovery for Millie from
080973 - medical mistakes UCSF made providing radiation medical services on
080974 - referral from Kaiser, and notifying Kaiser and UCSF that Millie's
080975 - recovery requires all reasonable and necessary efforts and costs, and
080976 - is not limited by benefits of her insurance policy, and medicare law.
080977 - ref SDS 27 IZ7N
080979 -  ..
080980 - On 100528 1031 Millie received letter from Julin at Medicare answering
080981 - Millie's letter yesterday, requesting Medicare assistance directing
080982 - Kaiser to provide reasonable and necessary care for Millie to recover
080983 - from UCSF medical mistakes. ref SDS 29 4W5F  Called Medicare to
080984 - expedite Millie's care. ref SDS 29 JS9H  Talked to Cherry and Beth who
080985 - explained Medicare work plan for processing Millie's complaint.
080986 - ref SDS 29 P28U
080988 -  ..
080989 - On 100601 0136 Millie submitted agenda to medical team for meeting
080990 - with Doctor Johnson at Kaiser, ref SDS 0 QQ6N, initially notifying the
080991 - team that cancer has gotten worse due to improper treatment for a
080992 - year. ref SDS 0 1P6U; Millie reports new medical problem of swelling
080993 - her lower legs. ref SDS 0 1Q3S, and that appetite and energy continue
080994 - to decline caused by improper treatment with chemotherapy the past
080995 - year, ref SDS 0 1Q3V; so, "everybody is now on board" that
080996 - chemotherapy has failed to relieve Millie's cancer, causes agonizing
080997 - pain and suffering, causes fatal infection, and anemia, ref SDS 0
080998 - 1Q5T; Millie requests again implementing UCSF work plan presented on
080999 - 090616, using treatment targeted to Millie's cancer beginning with
081000 - PARP or equal, and for the purpose of recovering from UCSF medical
081001 - mistakes, ref SDS 0 1Q3Y, and as planned in Doctor Rugo's letter on
081002 - 100501, and as further requested in Millie's claim filed on 100527,
081003 - with copy to Doctor Johnson. ref SDS 0 1Q5W  Critical step is starting
081004 - treatment with PARP immediately. ref SDS 0 1Q6U
081005 -
081006 -
081007 -
081009 -  ..
0811 -
0812 -
0813 - Progress
0814 -
081401 - Millie's letter to medical team says...
081402 -
081403 -    1.  Subject: Cancer 11th Relapse Work Plan
081404 -        Date: Tue, 01 Jun 2010 02:19:11 -0700
081416 -         ..
081417 -    2.  Good news - blood counts from the lab on Saturday 100529, are
081418 -        very strong, so I am in good shape to recover from 11th relapse
081419 -        of cancer reported to the medical team on 100501. ref SDS 17
081420 -        U46S
081422 -         ..
081423 -    3.  Very pleased that problems getting blood draws in the
081424 -        Chemotherapy Clinic using my Power Port have been corrected.
081425 -        Saturday, everything went smoothly [...reported on 100529 0930.
081426 -        ref SDS 30 AS5H, and as a result of Doctor Johnson entering in
081427 -        Millie's medical chart for the meeting on 100427, that blood
081428 -        draws should be performed using Millie's Power Port only
081429 -        because using either left or right arms causes cancer to
081430 -        spread. ref SDS 16 X74Q...]
081432 -         ..
081433 -    4.  Bad news -- cancer has progressed since 100501, as noted at
081434 -        that time primarily on my right side that has not been treated
081435 -        with radiation.  The left side seems more stable.  Since
081436 -        Abraxane was not effective, and I have been without treatment
081437 -        targeted to my cancer since MPA ended in July, 2009, IBC has
081438 -        gotten worse, shown by cancer marker CA 15-3 520 from the blood
081439 -        test on 090511, and in the study correlating treatments with CA
081440 -        15-3, reported on 090323. ref SDS 10 J13O
081442 -         ..
081443 -    5.  Hoping cancer marker for the test on Saturday to be below
081444 -        1,000, so I have a chance to recover again.
081445 -
081446 -            [On 100603 0449 Millie's letter asks Kaiser for cancer
081447 -            marker for lab on 100529. ref SDS 32 IX5R
081448 -
081449 -            [On 100605 1817 Doctor Johnson's letter to Millie does not
081450 -            report results of cancer marker. ref SDS 33 036C
081452 -             ..
081453 -            [On 100605 1838 Millie asks Kaiser again for results of
081454 -            cancer marker on lab test 100529. ref SDS 34 CG8V
081456 -             ..
081457 -            [On 100606 1604 Doctor Johnson reports Millie's cancer
081458 -            marker for lab on 100529 was CA 15-3 606, ref SDS 35 8H5I,
081459 -            considerably less than expected in Millie's letter on
081460 -            100601 0136. ref SDS 0 1Q3P
081462 -             ..
081463 -            [On 100606 1638 Millie thanks Doctor Johnson for submitting
081464 -            results of lab on 100529, showing less increase in cancer
081465 -            marker than exptected, even after 3 weeks without
081466 -            treatment, ref SDS 36 036C, and indicating there is still
081467 -            no internal involvement. ref SDS 36 PQ6V
081469 -         ..
081470 -    6.  Lymphedema has migrated to my lower legs.  I have tried to
081471 -        control this by elevating my legs.  It has worked somewhat.
081472 -
081473 -            [On 100601 0830 Doctor Johnson diagnosed Phlebitis, which
081474 -            can be fatal causing blood clots; he ordered treatment with
081475 -            Relafen for 2 weeks, ref SDS 31 OP4G; this is the 2nd major
081476 -            infection from treating Millie with chemotherapy that
081477 -            conflicts with patient profile, reported on 090601 0818.
081478 -            ref SDS 13 FR8L
081480 -         ..
081481 -    7.  Energy and appetite/weight continue to decline from
081482 -        chemotherapy side effects accumulating, and rising cancer
081483 -        taking a toll.
081485 -         ..
081486 -    8.  This record supports your plan beginning on 080829 for UCSF to
081487 -        treat my cancer with agents targeted to my cancer, like
081488 -        cetuximab, which is effective, and does not have painful side
081489 -        effects, nor lower blood counts, as chemotherapy does, causing
081490 -        infection and death.
081492 -         ..
081493 -    9.  UCSF implemented "targeted" treatment on 090616, with MPA, and
081494 -        planned the next treatment to be with PARP, as necessary and
081495 -        reasonable to recover from medical mistakes, discovered by
081496 -        Doctor Hsu the week before on 090609.
081498 -         ..
081499 -   10.  You reviewed PARP on 100112, and found it targets my triple
081500 -        negative status, necessary for me to recover.
081502 -         ..
081503 -   11.  On 100302, you advised that targeted treatments reduce my
081504 -        exposure to infection from shingles, and, unlike chemo, can be
081505 -        given concurrently, so recovery from cancer is not interrupted,
081506 -        as it was for 3 weeks in February.  This makes targeted
081507 -        treatment necessary and reasonable to recover from UCSF medical
081508 -        mistakes.
081510 -         ..
081511 -   12.  On 100427, you explained Kaiser's strategy to provide treatment
081512 -        targeted to my cancer, because chemotherapy is not effective,
081513 -        and presents severe risks for my unique patient profile.
081515 -         ..
081516 -   13.  I am pleased everybody is now on board that chemotherapy is not
081517 -        a good solution for my cancer [...noted in Kaiser's medical
081518 -        chart for examination on 100330, Assessment cites Millie
081519 -        suffers anemia caused by chemotherapy. 100330 0830, ref SDS 15
081520 -        Y889...]
081522 -         ..
081523 -   14.  Doctor Rugo at UCSF notified the medical team on 100501, that
081524 -        she planned to collaborate with you on recovery from my 11th
081525 -        relapse of cancer.
081527 -         ..
081528 -   15.  In the morning, I would like Kaiser's work plan for necessary
081529 -        and reasonable care to recover from UCSF medical mistakes
081530 -        providing radiation services on referral from Kaiser, and as
081531 -        set out in my letter on 100527, to Kaiser's Claims Resolution
081532 -        Department. ref SDS 27 IZ7N
081533 -
081534 -            [On 100601 0830 Doctor Johnson reports Kaiser cannot
081535 -            provide a work plan for Millie to recover from injuries
081536 -            caused by medical mistakes getting radiation treatments
081537 -            from UCSF on referral from Kaiser, because he has been
081538 -            unable to communicate with UCSF by telephone or email
081539 -            during the past 4-weeks, ref SDS 31 4G6G, to provide due
081540 -            process for standard of care comparing tradeoffs on 20
081541 -            treatments targeted to Millie's patient profile, as listed
081542 -            in Millie's claim on 100527 0217, ref SDS 27 X77U, and so
081543 -            that Millie can then exercise her right to choose life with
081544 -            effective treatment, or to give up treatment and die in
081545 -            Hospice, based on best evidence.
081547 -         ..
081548 -   16.  Kaiser has avoided demanding performance from UCSF, in order to
081549 -        maintain good business relations [reported on 091112 1229.
081550 -        ref SDS 14 A593].  This does not excuse failure to perform
081551 -        standard of care.  Good business relations rest on good work,
081552 -        including fixing mistakes in time to be effective.
081554 -         ..
081555 -   17.  Critical steps are to start treatment with PARP or equal to
081556 -        arrest advance of cancer and eliminate side effects, and to
081557 -        provide standard of care comparing trade-offs for 20 treatments
081558 -        pending since 090326 [shown in Millie's claim to Kaiser
081559 -        submitted to Doctor Johnson and Doctor Rugo on 100527 0217,
081560 -        ref SDS 27 X77U].
081562 -         ..
081563 -   18.  UCSF has primary responsibility to recover from medical
081564 -        mistakes.  I was told on 090616, my care for cancer was
081565 -        transferred to UCSF.  If UCSF fails to perform, then Kaiser
081566 -        needs to quickly hire someone else, otherwise I am in grave
081567 -        jeopardy.
081568 -
081569 -            [On 100601 0830 Doctor Johnson reports Kaiser cannot
081570 -            provide a work plan for Millie recover from injuries caused
081571 -            by medical mistakes getting radiation treatments from UCSF
081572 -            on referral from Kaiser, because he has been unable to
081573 -            communicate with UCSF by telephone or email during the past
081574 -            4-weeks. ref SDS 31 4G6G
081576 -         ..
081577 -   19.  Thanks for continuing support.
081578 -
081585 -
081586 -
081587 -
081588 -
081589 -
081590 -
0816 -