THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net
S U M M A R Y
DIARY: May 3, 2010 11:38 PM Monday;
Rod Welch
Millie notifies medical team she is implementing Kaiser guidance getting 2
more treatments with Abraxane chemotherapy that seems to be failing.
1...Summary/Objective
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CONTACTS
SUBJECTS
Default Null Subject Account for Blank Record
0403 -
0403 - ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 25 0000. ref SDS 24 0000.
040502 -
040503 -
040504 -
040505 -
040507 - ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 100501 1037 Millie letter to medical team confirms Kaiser's new
040902 - strategy to treat Millie's cancer with "targeted therapy." ref SDS 20
040903 - F25O Millie requests Kaiser immediately switch from Abraxane
040904 - chemotherapy that has failed, and implement Doctor Rugo's plan at UCSF
040905 - on 090616, to treat Millie with PARP that is "targeted" to Millie's
040906 - rare patient profile of "triple negative" and avoids pain and
040907 - suffering from chemotherapy side effects, and for the purpose of
040908 - recovering from UCSF medical mistakes. ref SDS 20 U47P and ref SDS 20
040909 - U49V
040911 - ..
040912 - On 100501 2017 Millie received letter from Doctor Rugo saying she will
040913 - communicate with Doctor Johnson at Kaiser on the work plan for Millie
040914 - to recover from the 11th relapse of cancer. ref SDS 21 HH4I
040916 - ..
040917 - On 100502 0140 Millie responds to Doctor Rugo's letter reporting
040918 - commitment to communicate with Doctor Johnson at Kaiser on the work
040919 - plan for Millie to recover from 11th relapse of cancer. ref SDS 22
040920 - HH4I
040922 - ..
040923 - On 100502 2143 Millie received secure email from Kaiser that is
040924 - difficult to open. ref SDS 23 HH4I The next day was able to open the
040925 - letter, and discovered Doctor Johnson confirms that some patients can
040926 - be treated successfully with "targeted" therapies; he recalls that
040927 - this strategy has already been executed for Millie. ref SDS 23 YX8L
040929 - ..
040930 - On 100503 1522 Millie notifies medical team of difficulty using Kaiser
040931 - secure email; asks about getting treatment with Abraxane chemotherapy
040932 - scheduled for Wednesday, 100505, or switching to a "targeted" agent.
040933 - ref SDS 24 HH4I
040935 - ..
040936 - On 100503 1945 Millie receives letter from Kaiser saying to continue
040937 - with Abraxane chemotherapy for 2 more treatments, and then after 2
040938 - weeks without treatment the doctor will discuss next steps in a
040939 - meeting at Kaiser. ref SDS 25 HH4I
040941 - ..
040942 - On 100503 2338 Millie notifies medical team that Kaiser guidance will
040943 - be implemented to get 2 treatments that complete 3rd cycle of
040944 - Abraxane, ref SDS 0 HH4I,
040945 -
040946 -
040947 -
040949 - ..
0410 -
0411 -
0412 - Progress
0413 -
041301 - Millie's letter to the medical team says...
041302 -
041303 - 1. Subject: Cancer 11th Relapse Work Plan
041304 - Date: Mon, 03 May 2010 23:50:48 -0700
041315 - ..
041316 - 3. With respect to discussions after my trip [...proposed in
041317 - Doctor Johnson's letter on 100503 1945, ref SDS 25 HH4I...], I
041318 - return on Friday, 100528. Are we scheduled to meet on Tuesday,
041319 - 100601, the day after Memorial Day? To facilitate the meeting
041320 - Tuesday, can you schedule me for a lab on Saturday, 100529, so
041321 - results are available for the meeting Tuesday? If I can
041322 - schedule the lab, I am happy to do it, but I recall that
041323 - someone "official" has to put in an order??? Maybe Arlette can
041324 - do it; just let me know. We have a standing order, but not for
041325 - Saturday.
041327 - ..
041328 - 4. Per your letter today, I will follow your guidance to get the
041329 - next 2 treatments for the 3rd cycle of Abraxane, and then leave
041330 - for 2 weeks on 100515, returning on 100528 [at which time the
041331 - doctor proposes discussing Millie's need to change treatments
041332 - in order to recover from the 11th relapse of cancer, reported
041333 - on 100503 1945, ref SDS 25 HH4I]. I take your guidance today
041334 - as assurance that I can recover from the 11th relapse beginning
041335 - a new treatment OA 100602, with chances of success equal to
041336 - starting the new treatment immediately on Wednesday 100505.
041337 -
041338 - [On 010505 0730 Millie received the 2nd treatment at Kaiser
041339 - for the 3rd cycle of Abraxane chemotherapy, as ordered by
041340 - Doctor Johnson. ref SDS 27 KE4K
041342 - ..
041343 - 5. Recall that you saw me a few months ago for similar exigent
041344 - circumstances on 100218, at that time my cancer marker had just
041345 - increased 60 points or so to CA 15-3 426, and cancer had
041346 - intensified, similar to the current situation. At that time,
041347 - on 100218 you immediately switched treatment from Navelbine to
041348 - Abraxane. ref SDS 15 PP5Y
041349 -
041350 - [On 100504 1609 Sara, Practice Manager for Oncology at
041351 - UCSF, reported that Doctor Rugo plans to collaborate with
041352 - Doctor Johnson on treatment for Millie to recover from 11th
041353 - relapse of cancer. ref SDS 26 SN6L
041355 - ..
041356 - 6. As well, on 090202 Doctor Rugo wrote to the team that I needed
041357 - urgent change in treatment, ref SDS 4 Y15J; at that time the
041358 - cancer marker was CA 15-3 113 on UCSF's diagnostic, which for
041359 - some reason translates to 200 or so on Kaiser's cancer marker
041360 - test, but at least half the current level at 424.
041362 - ..
041363 - 7. I would therefore like to know why it was urgent to change
041364 - treatment on 090202, and again on 100218, but Kaiser feels
041365 - there is no urgency today for seemingly much worse
041366 - circumstances? Possibly there is a material difference that is
041367 - not evident in the record. Please let me know.
041369 - ..
041370 - 8. I need to know if Doctor Rugo has followed up on UCSF's
041371 - commitment to communicate with you on planning my recovery from
041372 - medical mistakes [reported on 100501 2017, ref SDS 21 456L]. I
041373 - asked for this communication in my letter to her yesterday [see
041374 - the record on 100502 0140, ref SDS 22 CO6S], and to you today.
041375 - 100503 1522, ref SDS 24 TD7U I further offered to hear UCSF's
041376 - report in a conference call with you and Doctor Rugo today, if
041377 - that would be easier for you and her. ref SDS 24 TD8T Since,
041378 - you did not call, and since you did not relate any
041379 - communication from Doctor Rugo in your letter today, I assume
041380 - UCSF has not communicated, and so is in default on its referral
041381 - obligations to me and to Kaiser.
041382 -
041383 - [On 100504 1609 Sara, Practice Manager for the UCSF
041384 - Oncology Breast Care Clinic, called and notified Millie
041385 - that Doctor Rugo would communicate with Doctor Johnson, or
041386 - had already done so, to coordinate with Kaiser on planning
041387 - Millie's next treatment to recover from the 11th relapse of
041388 - cancer. ref SDS 26 NT5N
041390 - ..
041391 - 9. I need a written explanation of the work plan for my next
041392 - treatment that can be reviewed over the next 4 weeks,
041393 - concurrent with completing the two (2) Abraxane treatments, and
041394 - during my trip, as you propose in your letter today [reported
041395 - on 100503 1945, ref SDS 25 HH4I,]. Kaiser's analysis comparing
041396 - trade-offs on treatment options, including ending treatment,
041397 - enables me to be prepared, with the aid of patient assistance,
041398 - for a productive meeting with you after my trip, also, as you
041399 - propose today. ref SDS 25 HH4I If you need assistance finding
041400 - the record on treatment options, as Glenna requested in Doctor
041401 - Rugo's office on 090121, ref SDS 2 EV53, please let me know,
041402 - and Rod, will assist the team, as we have done continually
041403 - citing the record on 090326. ref SDS 8 DW5S
041404 -
041405 - [On 100601 0830 Doctor Johnson reported he received
041406 - securemail from Doctor Rugo at UCSF encrypted to protect
041407 - confidentiality of Millie's health records, but he could
041408 - not open the letter; he sent Doctor a securemail advising
041409 - he could not open her securemail, and he received back a
041410 - public domain email from Doctor Rugo that she could not
041411 - open Doctor Johnson's letter from Kaiesr; as a result of
041412 - failed communcation with email and telephone for over a
041413 - month, Doctor Johnson was unable to prescribe treatment for
041414 - Millie to recover from medical mistakes getting radiation
041415 - treatments at UCSF on referral from Kaiser; resulting in
041416 - Millie being forced into Hospice to die. ref SDS 28 D658
041418 - ..
041419 - 10. Please call if you have any questions.
041421 - ..
041422 - 11. Your efforts and consideration are greatly appreciated.
041423 -
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0415 -