THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: May 3, 2010 11:38 PM Monday; Rod Welch

Millie notifies medical team she is implementing Kaiser guidance getting 2
more treatments with Abraxane chemotherapy that seems to be failing.

1...Summary/Objective


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SUBJECTS
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0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 25 0000. ref SDS 24 0000.
040502 -
040503 -
040504 -
040505 -
040507 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 100501 1037 Millie letter to medical team confirms Kaiser's new
040902 - strategy to treat Millie's cancer with "targeted therapy." ref SDS 20
040903 - F25O  Millie requests Kaiser immediately switch from Abraxane
040904 - chemotherapy that has failed, and implement Doctor Rugo's plan at UCSF
040905 - on 090616, to treat Millie with PARP that is "targeted" to Millie's
040906 - rare patient profile of "triple negative" and avoids pain and
040907 - suffering from chemotherapy side effects, and for the purpose of
040908 - recovering from UCSF medical mistakes. ref SDS 20 U47P and ref SDS 20
040909 - U49V
040911 -  ..
040912 - On 100501 2017 Millie received letter from Doctor Rugo saying she will
040913 - communicate with Doctor Johnson at Kaiser on the work plan for Millie
040914 - to recover from the 11th relapse of cancer. ref SDS 21 HH4I
040916 -  ..
040917 - On 100502 0140 Millie responds to Doctor Rugo's letter reporting
040918 - commitment to communicate with Doctor Johnson at Kaiser on the work
040919 - plan for Millie to recover from 11th relapse of cancer. ref SDS 22
040920 - HH4I
040922 -  ..
040923 - On 100502 2143 Millie received secure email from Kaiser that is
040924 - difficult to open. ref SDS 23 HH4I  The next day was able to open the
040925 - letter, and discovered Doctor Johnson confirms that some patients can
040926 - be treated successfully with "targeted" therapies; he recalls that
040927 - this strategy has already been executed for Millie. ref SDS 23 YX8L
040929 -  ..
040930 - On 100503 1522 Millie notifies medical team of difficulty using Kaiser
040931 - secure email; asks about getting treatment with Abraxane chemotherapy
040932 - scheduled for Wednesday, 100505, or switching to a "targeted" agent.
040933 - ref SDS 24 HH4I
040935 -  ..
040936 - On 100503 1945 Millie receives letter from Kaiser saying to continue
040937 - with Abraxane chemotherapy for 2 more treatments, and then after 2
040938 - weeks without treatment the doctor will discuss next steps in a
040939 - meeting at Kaiser. ref SDS 25 HH4I
040941 -  ..
040942 - On 100503 2338 Millie notifies medical team that Kaiser guidance will
040943 - be implemented to get 2 treatments that complete 3rd cycle of
040944 - Abraxane, ref SDS 0 HH4I,
040945 -
040946 -
040947 -
040949 -  ..
0410 -
0411 -
0412 - Progress
0413 -
041301 - Millie's letter to the medical team says...
041302 -
041303 -    1.  Subject: Cancer 11th Relapse Work Plan
041304 -        Date: Mon, 03 May 2010 23:50:48 -0700
041315 -         ..
041316 -    3.  With respect to discussions after my trip [...proposed in
041317 -        Doctor Johnson's letter on 100503 1945, ref SDS 25 HH4I...], I
041318 -        return on Friday, 100528.  Are we scheduled to meet on Tuesday,
041319 -        100601, the day after Memorial Day?  To facilitate the meeting
041320 -        Tuesday, can you schedule me for a lab on Saturday, 100529, so
041321 -        results are available for the meeting Tuesday?  If I can
041322 -        schedule the lab, I am happy to do it, but I recall that
041323 -        someone "official" has to put in an order???  Maybe Arlette can
041324 -        do it; just let me know.  We have a standing order, but not for
041325 -        Saturday.
041327 -         ..
041328 -    4.  Per your letter today, I will follow your guidance to get the
041329 -        next 2 treatments for the 3rd cycle of Abraxane, and then leave
041330 -        for 2 weeks on 100515, returning on 100528 [at which time the
041331 -        doctor proposes discussing Millie's need to change treatments
041332 -        in order to recover from the 11th relapse of cancer, reported
041333 -        on 100503 1945, ref SDS 25 HH4I].  I take your guidance today
041334 -        as assurance that I can recover from the 11th relapse beginning
041335 -        a new treatment OA 100602, with chances of success equal to
041336 -        starting the new treatment immediately on Wednesday 100505.
041337 -
041338 -            [On 010505 0730 Millie received the 2nd treatment at Kaiser
041339 -            for the 3rd cycle of Abraxane chemotherapy, as ordered by
041340 -            Doctor Johnson. ref SDS 27 KE4K
041342 -         ..
041343 -    5.  Recall that you saw me a few months ago for similar exigent
041344 -        circumstances on 100218, at that time my cancer marker had just
041345 -        increased 60 points or so to CA 15-3 426, and cancer had
041346 -        intensified, similar to the current situation.  At that time,
041347 -        on 100218 you immediately switched treatment from Navelbine to
041348 -        Abraxane. ref SDS 15 PP5Y
041349 -
041350 -            [On 100504 1609 Sara, Practice Manager for Oncology at
041351 -            UCSF, reported that Doctor Rugo plans to collaborate with
041352 -            Doctor Johnson on treatment for Millie to recover from 11th
041353 -            relapse of cancer. ref SDS 26 SN6L
041355 -         ..
041356 -    6.  As well, on 090202 Doctor Rugo wrote to the team that I needed
041357 -        urgent change in treatment, ref SDS 4 Y15J; at that time the
041358 -        cancer marker was CA 15-3 113 on UCSF's diagnostic, which for
041359 -        some reason translates to 200 or so on Kaiser's cancer marker
041360 -        test, but at least half the current level at 424.
041362 -         ..
041363 -    7.  I would therefore like to know why it was urgent to change
041364 -        treatment on 090202, and again on 100218, but Kaiser feels
041365 -        there is no urgency today for seemingly much worse
041366 -        circumstances?  Possibly there is a material difference that is
041367 -        not evident in the record.  Please let me know.
041369 -         ..
041370 -    8.  I need to know if Doctor Rugo has followed up on UCSF's
041371 -        commitment to communicate with you on planning my recovery from
041372 -        medical mistakes [reported on 100501 2017, ref SDS 21 456L].  I
041373 -        asked for this communication in my letter to her yesterday [see
041374 -        the record on 100502 0140, ref SDS 22 CO6S], and to you today.
041375 -        100503 1522, ref SDS 24 TD7U  I further offered to hear UCSF's
041376 -        report in a conference call with you and Doctor Rugo today, if
041377 -        that would be easier for you and her. ref SDS 24 TD8T  Since,
041378 -        you did not call, and since you did not relate any
041379 -        communication from Doctor Rugo in your letter today, I assume
041380 -        UCSF has not communicated, and so is in default on its referral
041381 -        obligations to me and to Kaiser.
041382 -
041383 -            [On 100504 1609 Sara, Practice Manager for the UCSF
041384 -            Oncology Breast Care Clinic, called and notified Millie
041385 -            that Doctor Rugo would communicate with Doctor Johnson, or
041386 -            had already done so, to coordinate with Kaiser on planning
041387 -            Millie's next treatment to recover from the 11th relapse of
041388 -            cancer. ref SDS 26 NT5N
041390 -         ..
041391 -    9.  I need a written explanation of the work plan for my next
041392 -        treatment that can be reviewed over the next 4 weeks,
041393 -        concurrent with completing the two (2) Abraxane treatments, and
041394 -        during my trip, as you propose in your letter today [reported
041395 -        on 100503 1945, ref SDS 25 HH4I,].  Kaiser's analysis comparing
041396 -        trade-offs on treatment options, including ending treatment,
041397 -        enables me to be prepared, with the aid of patient assistance,
041398 -        for a productive meeting with you after my trip, also, as you
041399 -        propose today. ref SDS 25 HH4I  If you need assistance finding
041400 -        the record on treatment options, as Glenna requested in Doctor
041401 -        Rugo's office on 090121, ref SDS 2 EV53, please let me know,
041402 -        and Rod, will assist the team, as we have done continually
041403 -        citing the record on 090326. ref SDS 8 DW5S
041404 -
041405 -            [On 100601 0830 Doctor Johnson reported he received
041406 -            securemail from Doctor Rugo at UCSF encrypted to protect
041407 -            confidentiality of Millie's health records, but he could
041408 -            not open the letter; he sent Doctor a securemail advising
041409 -            he could not open her securemail, and he received back a
041410 -            public domain email from Doctor Rugo that she could not
041411 -            open Doctor Johnson's letter from Kaiesr; as a result of
041412 -            failed communcation with email and telephone for over a
041413 -            month, Doctor Johnson was unable to prescribe treatment for
041414 -            Millie to recover from medical mistakes getting radiation
041415 -            treatments at UCSF on referral from Kaiser; resulting in
041416 -            Millie being forced into Hospice to die. ref SDS 28 D658
041418 -         ..
041419 -   10.  Please call if you have any questions.
041421 -         ..
041422 -   11.  Your efforts and consideration are greatly appreciated.
041423 -
041429 -
041430 -
041431 -
041432 -
041433 -
041434 -
041435 -
041436 -
041437 -
0415 -