CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 21 0000. ref SDS 20 0000.
040502 -
040503 -
040504 -
040505 -
040507 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 100501 1037 Millie letter to medical team confirms Kaiser's new
040902 - strategy to treat Millie's cancer with "targeted therapy." ref SDS 18
040903 - F25O  Millie requests Kaiser immediately switch from Abraxane
040904 - chemotherapy that has failed, and implement Doctor Rugo's plan at UCSF
040905 - on 090616, to treat Millie with PARP that is "targeted" to Millie's
040906 - rare patient profile of "triple negative" and avoids pain and
040907 - suffering from chemotherapy side effects, and for the purpose of
040908 - recovering from UCSF medical mistakes. ref SDS 18 U47P and ref SDS 18
040909 - U49V
040911 -  ..
040912 - On 100501 2017 Millie received letter from Doctor Rugo saying she will
040913 - communicate with Doctor Johnson at Kaiser on the work plan for Millie
040914 - to recover from the 11th relapse of cancer. ref SDS 19 HH4I
040916 -  ..
040917 - On 100502 0140 Millie responds to Doctor Rugo's letter reporting
040918 - commitment to communicate with Doctor Johnson at Kaiser on the work
040919 - plan for Millie to recover from 11th relapse of cancer. ref SDS 20
040920 - HH4I
040922 -  ..
040923 - On 100502 2143 Millie received secure email from Kaiser that is
040924 - difficult to open. ref SDS 21 HH4I  The next day was able to open the
040925 - letter, and discovered Doctor Johnson confirms that some patients can
040926 - be treated successfully with "targeted" therapies; he recalls that
040927 - this strategy has already been executed for Millie. ref SDS 21 YX8L
040929 -  ..
040930 - On 100503 1522 Millie notifies medical team of difficulty using Kaiser
040931 - secure email; asks about getting treatment with Abraxane chemotherapy
040932 - scheduled for Wednesday, 100505, or switching to a "targeted" agent.
040933 - ref SDS 0 HH4I
040934 -
040935 -
040937 -  ..
0410 -
0411 -
0412 - Progress
0413 -
041301 - Millie's letter to medical team says...
041302 -
041303 -    1.  Subject: Cancer 11th Relapse Work Plan
041304 -        Date: Mon, 03 May 2010 15:34:22 -0700
041316 -         ..
041317 -    3.  I got your secure mail, but could not open it, and then somehow
041318 -        I seem to have deleted it [reported on 100502 2143. ref SDS 21
041319 -        MZ8V
041320 -
041321 -            [On 100503 1945 Kaiser resubmitted letter sent initially
041322 -            with "secure email" for protecting patient confidentiality,
041323 -            and using public domain email with level of confidentiality
041324 -            acceptable to the patient for efficient communication.
041325 -            ref SDS 22 YL5N
041327 -             ..
041328 -            [On 100601 0830 Doctor Johnson reported he received
041329 -            securemail from Doctor Rugo at UCSF encrypted to protect
041330 -            confidentiality of Millie's health records, but he could
041331 -            not open the letter; he sent Doctor a securemail advising
041332 -            he could not open her securemail, and he received back a
041333 -            public domain email from Doctor Rugo that she could not
041334 -            open Doctor Johnson's letter from Kaiesr; as a result of
041335 -            failed communcation with email and telephone for over a
041336 -            month, Doctor Johnson was unable to prescribe treatment for
041337 -            Millie to recover from medical mistakes getting radiation
041338 -            treatments at UCSF on referral from Kaiser; resulting in
041339 -            Millie being forced into Hospice to die. ref SDS 25 D658
041341 -         ..
041342 -    4.  Thanks for responding quickly, since time is of the essence to
041343 -        get the next treatment going [...requested in Millie's letter
041344 -        to the medical team on 100501 1037. ref SDS 18 U44V, and again
041345 -        in her letter to Doctor Rugo at UCSF on 100502 0140.
041346 -        ref SDS 20 HH4I...]
041348 -         ..
041349 -    5.  What should I do about treatment on Wednesday?  Should I go
041350 -        ahead or switch to another regimen, or wait until after my
041351 -        trip?
041352 -
041353 -            [On 100503 1945 Kaiser notifies Millie to get remaining 2
041354 -            treatments with Abraxane chemotherapy that seems to be
041355 -            failing, and then after 3 more weeks without treatment,
041356 -            following a trip abroad, the doctor will discuss "next
041357 -            steps." ref SDS 22 YL5N
041359 -             ..
041360 -            [On 100503 2338 Millie reports to medical team that she
041361 -            will implement the Kaiser's guidance to delay changing
041362 -            treatments, and takes Kaiser's letter today as assurance
041363 -            that recovery will be equal to changing treatment
041364 -            immediately on 100505. ref SDS 23 6X7S
041366 -             ..
041367 -            [On 100606 2314 Doctor Johnson reported that Doctor Rugo
041368 -            has still not returned his call from Kaiser requesting
041369 -            treatment plan for Millie to recover from UCSF medical
041370 -            mistakes. ref SDS 26 S66O
041372 -         ..
041373 -    6.  As stated in my letter to the team on Saturday, rising cancer
041374 -        marker CA 15-3 424 was disappointing last week, along with
041375 -        increasing cancer nodules on my right side.  The last time
041376 -        treatment was paused for 3 weeks, we nearly lost control.  Can
041377 -        we keep control for 2+ weeks without treatment during my trip?
041378 -        That's why I asked if there is a pill form of treatment I might
041379 -        take on the trip to maintain continuity of care, which you have
041380 -        indicated is essential to control the advance of cancer.  I was
041381 -        hoping we would not have this scenario, but we seem to have it.
041382 -
041383 -            [On 100504 1609 Sara, Practice Manager for Oncology at
041384 -            UCSF, reported that Doctor Rugo plans to collaborate with
041385 -            Doctor Johnson on treatment for Millie to recover from 11th
041386 -            relapse of cancer. ref SDS 24 SN6L
041388 -         ..
041389 -    7.  I do have good news.
041391 -         ..
041392 -    8.  The pain in my forehead from shingles has finally subsided.
041393 -        That is a big relief.  I still have some redness on the
041394 -        forehead, and so remain worried about shingles relapse.
041396 -         ..
041397 -    9.  I also feel there has been some improvement reducing IBC on the
041398 -        right side since yesterday, from the treatment last Wednesday.
041399 -        This is a "roller coaster" of emotions seeing IBC get worse,
041400 -        then possibly better, but wondering if this is merely "hopeful
041401 -        eyes."  Definitely feel stronger and more energetic yesterday
041402 -        and today than on Saturday.
041404 -         ..
041405 -   10.  Normally, I wait to get the next CA 15-3 until the 3rd
041406 -        treatment in the cycle.  Should we get it for the lab tomorrow
041407 -        to see where we are?
041409 -         ..
041410 -   11.  I was very pleased to hear from Doctor Rugo yesterday.  As you
041411 -        know, she committed to contacting you on the work plan for the
041412 -        11th relapse to recover from medical mistakes I suffered at
041413 -        UCSF getting radiation on referral from Kaiser [reported on
041414 -        100501 2017. ref SDS 19 456L].  Naturally, I need to know if
041415 -        UCSF is going to perform on the referral.  Please let me know
041416 -        what UCSF proposes.
041417 -
041418 -            [On 100504 1609 Sara, Practice Manager for Oncology at
041419 -            UCSF, reported that Doctor Rugo plans to collaborate with
041420 -            Doctor Johnson on treatment for Millie to recover from 11th
041421 -            relapse of cancer. ref SDS 24 SN6L
041429 -         ..
041430 -   14.  PS.  I am going shopping.  If you feel more comfortable calling
041431 -        rather than writing to sort out the strategy, I will be home by
041432 -        5pm.  A conference call with Doctor Rugo would be great.  You
041433 -        can call before 5pm and talk to Rod.  He is familiar with the
041434 -        issues.  Thanks.
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0415 -