CONTACTS 

SUBJECTS
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0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 20 0000. ref SDS 19 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 091202 Millie had the 3rd treatment in the 1st cycle of Navelbine.
040902 - ref SDS 12 625I
040904 -  ..
040905 - She is experiencing some possible recovery, but also evident worsening
040906 - of cancer due to lack of treatment targeted to her patient profile.
040908 -  ..
040909 - On 091203, Millie submitted a letter notifying the medical team about
040910 - possible progression of disease, and requesting treatment targeted to
040911 - her patient profile, ref SDS 13 4P7G, following up the letter on
040912 - 091112, ref SDS 8 IL8L, and meeting with Doctor Johnson at Kaiser
040913 - later that day on 091112. ref SDS 9 UT7M  The following letter
040914 - confirms understandings from meeting on 091112, and sets agenda for
040915 - meeting at Kaiser on 091210.
040917 -  ..
040918 - On 091211 0018 Millie letter confirms understandings from meeting at
040919 - Kaiser and thanks thanked medical team for excellent care, ref SDS 15
040920 - BW8I, based on Doctor Johnson's report in the meeting at Kaiser on
040921 - 091210 that Kaiser is collaborating with Doctor Rugo for UCSF to
040922 - prescribe treatment targeted to Millie's patient profile. ref SDS 15
040923 - XM3X
040925 -  ..
040926 - On 091211 1452 Doctor Johnson reports collaborating with Doctor Rugo
040927 - for UCSF as planned during the meeting yesterday. ref SDS 16 BW8I
040929 -  ..
040930 - On 091211 1648 Millie notifies Doctor Johnson to submit correspondence
040931 - of Kaiser collaborating with Doctor Rugo at UCSF on prescribing
040932 - treatment targeted to Millie's patient profile. ref SDS 17 BW8I
040934 -  ..
040935 - On 091214 1649 Doctor Johnson notifies Millie that Doctor Rugo has not
040936 - replied to Kaiser's letter on 091211. ref SDS 18 BW8I
040938 -  ..
040939 - On 091215 0852 Millie asks Doctor Johnson about sending a copy of
040940 - Kaiser's letter to Tara for assisting Doctor Rugo developing UCSF's
040941 - treatment plan targeted to Millie's patient profile. ref SDS 19 BW8I
040943 -  ..
040944 - On 091215 1557 Millie reports blood counts fall, still permit getting
040945 - 1st treatment 2nd cycle Navelbine, ref SDS 20 BW8I, asks about
040946 - progress collaborating on prescribing next treatment to recover from
040947 - 10th relapse of cancer.
040949 -  ..
040950 - On 100103 1147 Millie asks medical team about progress prescribing
040951 - treatment targeted to Millie's patient profile to recover from 10th
040952 - relapse of cancer. ref SDS 0 BW8I  Millie reports new symptom of rash
040953 - on right side of forehead, which is swelling the right eye; requests
040954 - examination tomorrow to prescribe immediate remedy. ref SDS 0 FZ6V
040955 -
040956 -
040957 -
040959 -  ..
0410 -
0411 -
0412 - Progress
0413 -
041301 - Millie's letter today supplemnts the letters on 091215, ref SDS 19
041302 - BW8I, responding to Doctor Johnson's letter on 091214 1649, reporting
041303 - Doctor Rugo has not had time to respond to Kaiser's request for UCSF
041304 - support on Millie's case, and saying...
041305 -
041306 -    1.  Subject: Treatment Plan 10th Relapse Cancer - Face Blemish Spreading New Symptom
041307 -        Date: Sun, 03 Jan 2010 12:08:27 -0800
041319 -         ..
041320 -    2.  Now that the Holidays are over, hopefully the medical team will
041321 -        have time to complete the treatment plan for my 10th relapse,
041322 -        which has occurred, or soon will.  As previously requested, I
041323 -        need a list of proposed treatments supplementing the list under
041324 -        review submitted to the team on 090326, and an explanation of
041325 -        trade-offs with respect to effectiveness, side effects, and
041326 -        cost [see case study requesting trade-offs reported on,
041327 -        ref SDS 6 X66O].
041329 -         ..
041330 -    3.  Currently, pain along the left arm and across my chest has
041331 -        become an increasing issue.  I have been taking oxychodone
041332 -        (Percocet) and Vicodin 2 - 4 times daily to control pain, and
041333 -        sometimes 2 Percocet at once, per your approval during the last
041334 -        meeting.
041336 -         ..
041337 -    4.  The past few days the right side of my forehead, and including
041338 -        my right eye lid, and extending onto the right side of my head
041339 -        above the hairline has developed a series of light red rashes.
041340 -        Hoping this is a side effect of Navelbine that will subside
041341 -        during this by-week prior to the next cycle.  Cannot find
041342 -        reference to a facial rash for Navelbine on the Internet.  The
041343 -        rash causes swelling and discomfort to the right eye.  Would
041344 -        like to get this investigated tomorrow.  Should I see you for
041345 -        initial review, and possibly referral to dermatology or
041346 -        opthalmology for the eye?  I could also go to Minor Injury or
041347 -        ER, if your schedule is too busy tomorrow.  Please let me know.
041348 -
041349 -            [On 100103 2023 Millie updated medical team explaining rash
041350 -            has worsened into severe blisters that seem to require
041351 -            immediate care. ref SDS 21 RH7Y
041353 -             ..
041354 -            [On 100104 2144 Doctor Zhang at Kaiser Adult Medicine
041355 -            diagnoses shingles, advises Millie should have been treated
041356 -            today in Kaiser's Emergency Department. ref SDS 22 0P9S
041358 -         ..
041359 -    5.  Your letter on 091214 1543 reported that Doctor Rugo did not
041360 -        have time to respond to your letter on 091211 requesting UCSF
041361 -        work plan for my next treatment.  Now that the Holidays are
041362 -        over, the medical team will have more time to collaborate on
041363 -        identifying treatment targeted to my patient profile.  I was
041364 -        thrilled with the cancer marker dropping to CA 15-3 211 on
041365 -        091215 after the 1st cycle of Navelbine.  This was a
041366 -        significant decline from nearly 400 in July and August, after
041367 -        resolving delays getting treatment requested in April.
041368 -
041369 -            [On 100105 1602 Millie reports diagnosis of shingles, and
041370 -            plans meeting with Doctor Johnson to review Doctor Rugo's
041371 -            prescription for Millie to recover from 10th relapse of
041372 -            cancer. ref SDS 23 P74V
041374 -             ..
041375 -            [On 100106 1317 Doctor Johnson called responding to
041376 -            Millie's letters, ref SDS 24 E199, and reported that Doctor
041377 -            Rugo has still not submitted a work plan for Millie to
041378 -            recover from UCSF medical mistakes. ref SDS 24 KH4F
041380 -         ..
041381 -    6.  Cancer marker most recently increased for the lab on 091222 to
041382 -        CA 15-3 248.  Hopefully, the rise of the cancer marker does not
041383 -        indicate the facial blemish is IBC spreading.  IBC rash on the
041384 -        left arm and across my chest seems about the same to possibly
041385 -        worse.  It has not continued to spread around my back nor the
041386 -        lower abdomen.
041387 -
041388 -            [On 100108 0852 Millie reports evident recovery from IBC
041389 -            with Navelbine treatments. ref SDS 25 MW3R
041391 -             ..
041392 -            [On 100112 0047 Millie submits agenda to medical team for
041393 -            meeting with Doctor Johnson to verify evident improvement
041394 -            recovering from IBC. ref SDS 26 IS4W
041396 -         ..
041397 -    7.  We have a meeting scheduled next week on 100112.  I would like
041398 -        to get feedback from Doctor Rugo on your collaborations, so I
041399 -        can be prepared for the meeting with you on 100112.  As well,
041400 -        please let me know if you can see me in the morning to address
041401 -        the new facial rash and swelling of my right eye.
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0415 -