CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 10 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - On 090609 0900 during a meeting at UCSF, Doctor Hsu diagnosed Millie's
040902 - cancer spreading and new breathing problems was caused by errors and
040903 - omissions performing radiation treatments at UCSF during February and
040904 - March, and on referral from Kaiser. ref SDS 7 W65W
040906 -  ..
040907 - On 090609 0900 Doctor Hsu prescribed treatment with MPA at UCSF for
040908 - Millie to recover from medical mistakes performing radiation earlier
040909 - at UCSF. ref SDS 7 W66W
040911 -  ..
040912 - On 090616 Millie started treatment for 8th relapse of cancer with MPA
040913 - on a clinical trial at UCSF. ref SDS 8 JH4F  During the meeting at
040914 - UCSF on 090616 Doctor said everybody is now on board after weeks of
040915 - conflict with Kaiser refusing treatment, to now collaborating with
040916 - UCSF on treating Millie's cancer as a chronic disease. ref SDS 8 D647
040918 -  ..
040919 - On 090626 1057 Millie submitted agenda for meeting at Kaiser to review
040920 - progress recovering from 7th relapse of cancer caused by medical
040921 - mistakes committed by UCSF providing radiation traetment on referral
040922 - from Kaiser. ref SDS 10 SA6R
040924 -  ..
040925 - On 090626 1140 Millie meeting with Doctor Johnson at Kaiser to review
040926 - progress on MPA protocol prescribed by UCSF for Millie to recover from
040927 - medical mistakes. ref SDS 11 XN5L
040929 -  ..
040930 - Millie's letter to the medical team says...
040931 -
040932 -    1.  Subject: Meeting Kaiser Assess Lung Issues and MPA Treatment for IBC Begun Jun 16th
040933 -        Date: Sat, 27 Jun 2009 02:40:57 -0700
040946 -         ..
040947 -    2.  Thanks very much for checking the CT test scans on the computer
040948 -        during the meeting yesterday on 090626. ref SDS 11 XN5L
040950 -         ..
040951 -    3.  You compared the test on 090612 with the prior CT on 090413,
040952 -        and seemed to conclude that ground glass opacities are
040953 -        essentially the same, but could be interpreted to be slightly
040954 -        worse or less, and so aligns generally, with the report issued
040955 -        by radiology.
040957 -         ..
040958 -    4.  You further pointed out that ground glass opacities seem to be
040959 -        distributed equally in both the left and right lungs; and, then
040960 -        noted that equal nodules in both lungs indicates ground glass
040961 -        opacities are more likely cancer induced, rather than caused by
040962 -        radiation, because the left side received more radiation during
040963 -        February and March treatment at UCSF than the right side.  If
040964 -        the problem were caused by radiation, then the left side which
040965 -        you feel got more radiation might show greater ground glass
040966 -        opacities.
040968 -         ..
040969 -    5.  The UCSF radiation plan reported in the record on 090226. may
040970 -        support your analysis. ref SDS 2 D452
040972 -         ..
040973 -    6.  You seemed to say that generally equal distribution of ground
040974 -        glass opacities observed in the CT scans from 090612, suggests
040975 -        radiation did not cause the problem.
040977 -         ..
040978 -    7.  This aligns with Doctor Hsu's analysis on 090609 indicating
040979 -        that IBC tumor in the breastbone area that did not get
040980 -        radiation treatment may be impacting the lungs, causing my new
040981 -        symptoms of diminished lung capacity and cough, ref SDS 7 R24G,
040982 -        most evident during heavy exercise, and which I'm hopeful has
040983 -        diminished slightly in recent days.
040985 -         ..
040986 -    8.  Examination yesterday [on 090626] noted vertical IBC sore
040987 -        slightly to the right of the breastbone (described as "vertical
040988 -        scabbing in the medical chart, ref SDS 11 WH3K), and reported to
040989 -        the team on 090510, ref SDS 5 LJ5T, but which at that time was
040990 -        difficult to differentiate from radiation side effects, and so
040991 -        was missed during examinations [on 090412 Doctor Rugo delayed
040992 -        treatment for cancer due to mistaken diagnosis that wound in
040993 -        the breastbone was caused by radiation side effects,
040994 -        ref SDS 3 K56O, but was actually cancer that required
040995 -        immediate care to prevent spread of metastatic disease,
040996 -        disclosed by Doctor Hsu on 090609, ref SDS 7 W65W].
040998 -         ..
040999 -    9.  You further advised that MPA treatment at UCSF presents the
041000 -        best chance to recover from this new condition, assuming cancer
041001 -        is the factor [prescribed in Kaiser's medical chart treatment
041002 -        plan on 090626 1140. ref SDS 11 837H], and so aligns with
041003 -        Doctor Rugo's report on 090616 that everybody is now board with
041004 -        the UCSF strategy, cited in the agenda for the meeting
041005 -        yesterday [on 090616, ref SDS 10 0E5V].
041007 -         ..
041008 -   10.  On the MPA acronym, Megan in Doctor Rugo's office confirmed
041009 -        your entry in the medical chart is correct.  Also found it on
041010 -        the bottle of pills received last week from Doctor Rugo. [see
041011 -        Doctor Johnson's medical chart on 090626, ref SDS 11 837H]
041013 -         ..
041014 -   11.  You also explained yesterday an alternate or perhaps
041015 -        supplemental theory of possible "atelectasis and
041016 -        bronchiectasis" shown in the report for the CT test on 090612,
041017 -        indicating this would more likely occur for an inactive
041018 -        patient, rather than in my case doing heavy exercise 3 - 5
041019 -        times per week.  You mentioned that your stethoscope
041020 -        examination found my lungs do not present wheezing, noted in
041021 -        the medical chart as "clear to auscultation." [reported on
041022 -        090626. ref SDS 11 YD6Q]
041024 -         ..
041025 -   12.  You emphasized these are preliminary conclusions based on
041026 -        fragmentary evidence that does not support a finding of actual
041027 -        lung cancer nor atelectasis and bronchiectasis, so that either,
041028 -        both or neither could be occurring.  Accordingly, your analysis
041029 -        lines up with comments by Doctor Mates in a call with Rod the
041030 -        day before on 090625. ref SDS 9 IJ4W  Slightly different
041031 -        conclusions reflect your long and close familiarity with
041032 -        patient history, which is not available to Doctor Mates.
041033 -
041034 -            [On 091112 0930 Kaiser's medical chart for Millie shows CT
041035 -            test on 090919 found ground glass opacity nodues resolved
041036 -            in some areas of the lungs, and new ones appear in other
041037 -            areas, ref SDS 14 WY8J, reflecting Doctor Hsu's report that
041038 -            radiation effects last for months after ending treatment,
041039 -            per above. ref SDS 4 YN5N
041041 -         ..
041042 -   13.  Very pleased therefore to have MPA underway at UCSF, hopefully
041043 -        in time to stem the tide of rising IBC, and that I can still
041044 -        play an active role in recovery by maintaining exercise, which
041045 -        you mentioned again yesterday has been shown by studies to help
041046 -        patients cope more effectively with cancer, cited previously in
041047 -        our meeting on 030606.
041049 -         ..
041050 -   14.  Thanks for checking my left ear, and reporting no evident
041051 -        continuing malady from a week or so ago, when I was
041052 -        experiencing a "hollow" sensation, and caused me concern about
041053 -        possible radiation side effects.
041055 -         ..
041056 -   15.  It was great seeing Arlette, and giving her a hug, and also
041057 -        Sheree, who, along with many others on the Kaiser team, have
041058 -        seen me through difficult times for 8 years.  Thanks especially
041059 -        to you for taking time to read through the agenda for the
041060 -        meeting, ref SDS 11 G36G, and providing excellent,
041061 -        comprehensive guidance that makes sense of complex issues.
041062 -
041069 -
041070 -
041071 -
041072 -
041073 -
041074 -
041075 -
041076 -
041077 -
041078 -
041079 -
041080 -
041081 -
041082 -
0411 -