CONTACTS 

SUBJECTS
White Blood Cell Condition Blood Test Shows Too Low Doctor Johnson A

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 78 0000. ref SDS 76 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - Millie sent the following letter to the medical team reporting results
040902 - of the meeting with Doctor Rugo yesterday on 090616 1245. ref SDS 75
040903 - TP9L
040905 -  ..
040906 - Millie met with Doctor Rugo yesterday and discussed results of CT test
040907 - on 090612, 090616 1245, ref SDS 75 JH48, and in order to start
040908 - treatment with MPA protocol to recover from 8th relapse of cancer,
040909 - 090616. ref SDS 75 YO4J
040911 -  ..
040912 - Millie sent a personal letter thanking Arlette for extra effort
040913 - coordinating at Kaiser to send the report on the CT test to UCSF for
040914 - Doctor to prepare for meeting on starting MPA treatment. 090617 1715,
040915 - ref SDS 78 6F4M
040917 -  ..
040918 - This evening Millie sent a letter to the medical team summarizing
040919 - findings from CT test that sets a baseline to evaluate MPA treatment
040920 - that started yesterday...
040921 -
040922 -    1.  Subject: CT Test Results Transmitted to UCSF by Arlette
040923 -        Date: Wed, 17 Jun 2009 20:10:50 -0700
040931 -         ..
040932 -    2.  You are supposed to be on vacation!!  But, thanks for sending
040933 -        me the reports on the CT tests last Friday.  Arlette sent it by
040934 -        fax to Doctor Rugo and Mike [separate letter thanks Arlette for
040935 -        faxing reports to UCSF. 090617 1715, ref SDS 78 6F4M]
040937 -         ..
040938 -    3.  I am pleased that prior adenopathy in the right axillary, and
040939 -        in both sides of the neck now seems resolved by this report.  I
040940 -        am a bit skeptical why this would occur without systemic
040941 -        treatment, and since only the left supraclavicular was
040942 -        radiated.  Otherwise there has been no treatment since 090122.
040943 -        Anyway seems like good news.
040945 -         ..
040946 -    4.  The "ground glass" issue that Doctor Rugo mentioned on Tuesday,
040947 -        [reported on 090616, ref SDS 75 YS4J], seems not to have
040948 -        increased much [since the prior test discussed by Doctor Rugo
040949 -        4-weeks ago on 090514 0830. ref SDS 64 NL9I]  Is this the same
040950 -        as "streaky atelectasis and bronchiectasis" also cited in the
040951 -        report, and would this be cancer related, which could be
040952 -        treated by MPA; or, is it another set of problems that requires
040953 -        another form of treatment?
040954 -
040955 -            [On 090618 1743 Millie's letter asks medical team again if
040956 -            breathing problems can be treated with MPA cancer drugs, or
040957 -            whether separate treatment is needed? ref SDS 79 TF6Y
040959 -             ..
040960 -            [On 090618 1743 Millie's letter asks medical team for
040961 -            further tests, examination, and treatment to recover from
040962 -            breathing problems. ref SDS 79 TG3X
040964 -             ..
040965 -            [On 090706 0301 Millie received a letter from Mike, Doctor
040966 -            Rugo's coordinator, saying his investigation discovered
040967 -            that nobody at UCSF ordered review of Millie's CT test scan
040968 -            files, ref SDS 81 1L6N, which were same-day hand- delivered
040969 -            to UCSF on 090612, ref SDS 69 UD5H, per Mike's request on
040970 -            090610 for timely review by UCSF. ref SDS 68 S537
040972 -         ..
040973 -    5.  I'm feeling better now; coughing has subsided and energy is up,
040974 -        so I will get back in the gym tomorrow, and hit the trail at
040975 -        Lafayette possibly in the afternoon, or may wait until
040976 -        tomorrow.
040978 -         ..
040979 -    6.  My question is whether anything in the CT test suggests I am at
040980 -        risk from heavy exercise?  Do I need to take any precautions?
040981 -
040982 -            [On 090618 1743 medical team did not notify Millie to avoid
040983 -            exercise, so she went hiking at Lafayette Reservoir to test
040984 -            her breathing. ref SDS 79 LE7M, and reported to the team
040985 -            that difficulty breathing prevented completing evan half of
040986 -            a lap, when normally she can do 2 - 3 laps. ref SDS 79 TF4U
040988 -             ..
040989 -            [On 090618 1743 Millie asks medical team again for guidance
040990 -            on risks of exercise compounding injury to health.
040991 -            ref SDS 79 TF6U
040993 -             ..
040994 -            [On 090619 1208 Doctor Johnson responds saying Millie is
040995 -            cleared for exercising to tolerance. ref SDS 80 LE7M
040997 -         ..
040998 -    7.  I'm sure it is my imagination, but my left arm with IBC seems
040999 -        lighter already.
041001 -         ..
041002 -    8.  Thanks again for sending me the report; it saves a lot of time
041003 -        getting the record posted.
041005 -         ..
041006 -    9.  Hope you have a good vacation.  See you next week.
041007 -
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041016 -
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0411 -