THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net
S U M M A R Y
DIARY: May 22, 2009 01:51 PM Friday;
Rod Welch
Millie notifies Kaiser that without medical advice she is forced to choose
hyperthermia and radiation in order to get urgent treatment quickly.
1...Summary/Objective
2...Agony of Chemotherapy Side Effects to Achieve Progression
..............
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CONTACTS
0206 - CMS Region 9 O-00000877 0605
020601 - Ms. Jullin Kwok; Kaiser Contract Manager O-00000877 0605
020603 - Kaiser Medicare Contract O-00000877 0605
SUBJECTS
Default Null Subject Account for Blank Record
0403 -
0403 - ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 44 0000. ref SDS 43 0000.
040502 -
040503 -
040504 -
040505 -
040507 - ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - On 090519 1613 Millie responded, ref SDS 34 8V8H, to the Doctor's
040902 - letter earlier yesterday afternoon on 090519 1536, ref SDS 33 5K7H;
040903 - and, Millie asks the doctor to prescribe treatment so she can recover
040904 - from cancer, as done previously in patient history, ref SDS 34 TY3X,
040905 - and further as planned by the doctor during the meeting on 090515
040906 - 1140. ref SDS 32 655R Millie also asked the doctor to call on
040907 - expediting treatment in time to be effective, see again on 090520
040908 - 1613, ref SDS 34 TY4W; and Millie asks Doctor Rugo for a "drop dead"
040909 - date on how soon treatment must start in order to be effective, also,
040910 - reported on 090519 1613. ref SDS 34 TX4W
040912 - ..
040913 - Since Kaiser has delayed ordering treatment, reported on 090520 1710.
040914 - ref SDS 39 ZF4Q, then on 090521 0211 Millie's letter to Doctor Rugo at
040915 - UCSF with copy to Doctor Hsu asks about getting treatment with
040916 - hyperthermia and Doxil, while Kaiser resolves delays ordering MPA
040917 - prescribed by Doctor Rugo for Millie to recover from 8th relapse of
040918 - cancer, which Millie reports is getting worse every day, ref SDS 40
040919 - FM7Q, and since Kaiser has previosuly authorized treatment with
040920 - hyperthermia and Doxil, which Doctor Rugo recommended earlier on
040921 - 090129 for Millie to recover from the 7th relapse. ref SDS 40 6M4F
040923 - ..
040924 - On 090521 2006, Millie received a letter from Doctor Johnson
040925 - responding to Millie's letter to the medical team on 090520 1710, and
040926 - requesting that Kaiser prescribe treatment suitable for Millie's
040927 - patient profile for recovering from 8th relapse of cancer. ref SDS 39
040928 - P65H Doctor Johnson's letter was sent through Kaiser's Knowledge
040929 - Management System and so was not disclosed to the medical team, and it
040930 - did transmit the Doctor Johnson's medical chart for the meeting on
040931 - 090515, ref SDS 31 YT5N, and said that Millie could "choose" any
040932 - treatment she wants, and no treatment is superior for Millie's patient
040933 - profile, 090521 2006, ref SDS 42 9Q9H; the doctor noted Millie's
040934 - cancer is progressing and so she needs to start treatment by the end
040935 - of the week, which was in just 12 hours, which means today,
040936 - ref SDS 42 HC8O, and the doctor told Millie to call Medicare for
040937 - prescribing treatment to recover from the 8th relapse of cancer.
040938 - ref SDS 42 HC93
040940 - ..
040941 - On 090522 0813 Millie responded to Doctor Johnson's letter on 090521
040942 - 2006 and submitted copies to the medical team to maintain
040943 - collaboration that has been effective treating Millie the past 8
040944 - years. Millie also sent a copy to Jullian Kwok to notify Medicare
040945 - that Kaiser is refusing treatment. ref SDS 43 RX6L Millie asked
040946 - Kaiser to prepare a workup and Tumor Board to evaluate Millie's next
040947 - treatment, including trade-offs comparing all of the treatments
040948 - available for Millie. ref SDS 43 7Z5Y Millie reports having called
040949 - Kaiser numerous times to speak with the doctor on prescribing
040950 - treatment. ref SDS 43 7Z9Y Millie notifies medical team she chooses
040951 - hyperthermia and radiation, Doxil, or other agent suitable for
040952 - Millie's patient profile. ref SDS 43 715V
040954 - ..
040955 - On 090522 1247 Millie received a response from Doctor Johnson to
040956 - Millie's letter on 090522 0813. ref SDS 43 RX6L who sent copies to the
040957 - medical team, and saying Kaiser has performed workups, but does not
040958 - submit any works, and says Millie's patient profile is too complex for
040959 - Tumor Board to evaluate best course of treatment, and that Millie's
040960 - patient profile resists single agent treatments like Gemzar and
040961 - Navelbine, and that Millie can choose Hospice instead of treatment
040962 - with drugs which her patient profile now resists. ref SDS 44 XO5O
040964 - ..
040965 - On 090522 1351 Millie responded to Kaiser's letter submitted by Doctor
040966 - Johnson on 090522 1247. ref SDS 44 XO5O
040967 -
040968 - 1. Subject: Treatment Plan 8th Relapse of Cancer Kaiser's Standard of Care
040969 - Date: Fri, 22 May 2009 14:46:35 -0700
040982 - ..
040983 - 2. Thanks very much for clarifying that I need to start treatment
040984 - soon, but there is a little time for planning [presented in
040985 - Kaiser's letter earlier today on 090522 1247, ref SDS 44 4Q91].
040986 - My goal is to start treatment next week [to recover from cancer
040987 - progressing since 090331, ref SDS 27 Q64R].
040989 - ..
040990 - 3. Can you comment please on CPT 11 listed in the medical chart,
040991 - and discussed in my letter this morning [reported on 090522
040992 - 0813. ref SDS 43 7Z6W, and which was not presented in Kaiser's
040993 - response letter on 090522 1247. ref SDS 44 XO5O] How does CPT
040994 - 11 compare with other treatment options I have [repeating
040995 - question on 090522 0813, ref SDS 43 715R]?
040996 -
040997 - [On 090522 1953 Doctor Johnson notifies Millie that CPT 11
040998 - is prescribed for patients with colon cancer; does not
040999 - confirm nor clarify if entry in Millie's medical chart is a
041000 - mistake, or that CPT 11 is a viable choice for her current
041001 - care to recover from the 8th relapse of cancer, and does
041002 - not present trade-offs with other treatments, which Millie
041003 - requested to facilitate choce of care. ref SDS 45 YT5M
041005 - ..
041006 - 4. Sounds like your treatment plan is Navelbine, Gemzar [see
041007 - Doctor Johnson's letter on 090522 1247. ref SDS 44 4Q8H, and]
041008 - maybe CTP 11 [per above, ref SDS 0 2T9W].
041009 -
041011 - ..
041012 - Agony of Chemotherapy Side Effects to Achieve Progression
041013 -
041014 -
041015 - 5. What is your estimated time to progression with these agents
041016 - and what side effects do you expect? Will this be weeks and
041017 - months of agony to achieve progression [repeating questions to
041018 - Doctor Rugo at UCSF on 090519 1613, ref SDS 34 TX4W, and on
041019 - 090521 0211. ref SDS 40 FM6X]
041020 -
041021 - [On 090522 1953 Kaiser discloses that Millie's doctor has
041022 - "no idea" how treatment Kaiser propose for Millie with
041023 - Gemzar and Navelbine will affect Millie's complex patient
041024 - profile; the doctor says these single-agent chemotherapy
041025 - treatments may not work at all for Millie to recover from
041026 - 8th relapse of cancer. ref SDS 45 UW6G
041028 - ..
041029 - [On 090605 1447 Millie received documentation from Kaiser
041030 - with additional problems Gemzar presents for Millie's
041031 - patient profile, saying that Gemzar requires extreme
041032 - caution given after a patient has been treated with
041033 - radiation, which Millie received for 4 weeks in February
041034 - and March, and contiues to suffer side effects; Kaiser
041035 - further says treatment with Gemzar requires avoiding blood
041036 - thinners, and Millie is required to take blood thinners
041037 - every day for PE. ref SDS 46 V34K
041039 - ..
041040 - 6. Does Kaiser still have clinical trials? You have prescribed
041041 - clinical trials for my care many times, beginning on 040318
041042 - {reported in case study on 090522 1247. ref SDS 44 4Q88]. In
041043 - each case you presented extensive advice on merits, explaining
041044 - in great detail why a treatment would help me and side effects
041045 - [e.g., on 040318 1615. ref SDS 1 PU6M] As my doctor, I've
041046 - asked you for medical advice on clinical trial options for my
041047 - 8th relapse of cancer [submitted to the medical team on 090326
041048 - 0058, ref SDS 24 DW5S, and cited again in a follow up letter to
041049 - Doctor Johnson alone also on 090326 0947. ref SDS 25 QM3V]
041051 - ..
041052 - 7. I've also asked for advice on getting more hyperthermia and
041053 - radiation, Doxil or other appropriate modalities [including
041054 - vaccines, presented in Millie's letter to the medical team on
041055 - 090522 0813. ref SDS 43 715V, and which is not answered in
041056 - Kaiser's response on 090522 1247. ref SDS 44 XO5O, and] which
041057 - you prescribed in February [see Kaiser Referral dated 090202
041058 - received in the record on 090205 1426. ref SDS 20 278T], and
041059 - which was very effective [reported on 090522 0813, ref SDS 43
041060 - 715V]. How does this fit in the treatment plan? Should
041061 - hyperthermia be done immediately or wait to see the response
041062 - from chemo?
041064 - ..
041065 - 8. Your letter yesterday asked [me] to choose a treatment
041066 - [reported on 090522 1247. ref SDS 44 4Q8H
041068 - ..
041069 - 9. As presented in the prior letter [reported on 090522 0813.
041070 - ref SDS 43 715V], absent medical advice, my choice is to treat
041071 - recurrent IBC on my left arm and isolated other areas with
041072 - hyperthermia according to Doctor Hsu's design, as he did in
041073 - February, and discussed on 090312 0800, ref SDS 22 F984]. Can
041074 - you please coordinate with UCSF to schedule this work. If he
041075 - needs a week or so to get started, then you can prescribe
041076 - Navelbine, Gemzar, or CPT 11 for interim care, at your
041077 - discretion.
041078 -
041085 -
041086 -
041087 -
041088 -
041089 -
041090 -
041091 -
041092 -
041093 -
041094 -
041095 -
041096 -
0411 -