THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net
S U M M A R Y
DIARY: April 15, 2009 03:19 PM Wednesday;
Rod Welch
Doctor Johnson called and says CT test does not show cancer in lungs.
1...Summary/Objective
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CONTACTS
SUBJECTS
Default Null Subject Account for Blank Record
0403 -
0403 - ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 9 0000.
040502 -
040503 -
040504 -
040506 - ..
0406 -
0407 -
0408 - Background
0409 -
040901 - 1. On 090310 Millie had a blood test at Kaiser.
040902 -
040903 - On 090312 Kaiser did not submit results for CA 15-3.
040905 - ..
040906 - 2. On 090317 Arlette advised that Kaiser failed to perform CA
040907 - 15-3, ref SDS 1 YM4K, and so ordered another blood draw.
040908 - ref SDS 1 Y04R
040910 - ..
040911 - 3. On 090323 CA 15-3 251 for the test on 090317, ref SDS 2 Y077,
040912 - showing first reduction in a year, and down from CA 15-3 303
040913 - for the test at Kaiser on 090116.
040915 - ..
040916 - 4. On 090413 Millie had a blood test at Kaiser, and a CT test to
040917 - support meeting with UCSF on 090423.
040919 - ..
040920 - 5. On 090415 0904 called Arlette at 1454 she reported CT test
040921 - reports progression of nodules in the lungs. ref SDS 9 RZ4U
040922 -
040923 -
040924 -
040926 - ..
0410 -
0411 -
0412 - Progress
0413 -
041301 - Doctor Johnson called following up telecon with Arlette about 30
041302 - minutes ago on 090423 1454 reporting the CT test on 09413 shows
041303 - progression of nodules in the lung. ref SDS 9 RZ4U He also received
041304 - Millie's letter sent a few mintues ago on 090415 1458. ref SDS 12 R18A
041306 - ..
041307 - The doctor has also read Millie's letter this morning on 090415 0949
041308 - reporting IBC spreading. ref SDS 10 KG8Q He explained having just
041309 - read through Millie's letter this afternoon on 090415 1424.
041310 - ref SDS 11 JT7H
041311 -
041312 - [On 090416 0010 Millie's letter to medical team confirms
041313 - understandings from Doctor Johnson's call today. ref SDS 14
041314 - 834Y
041316 - ..
041317 - Doctor Johnson was frustrated by continuing difficulty getting test
041318 - data submitted for Millie's care at UCSF, cited in Millie's letter
041319 - today, ref SDS 11 GU7S, extending problems reviewed in the case study
041320 - during the meeting at Kaiser on 090325 0830. ref SDS 3 KZ6N
041322 - ..
041323 - The doctor feels the amended referral which he filed last week on
041324 - 090409 1537 for UCSF to perform Millie's labs to evaluate care at
041325 - UCSF, will relieve stress on both the Kaiser lab and oncology staff
041326 - handling Millie's blood tests. ref SDS 7 PG7I, He was pleased to see
041327 - Millie's letter on 090401 1520, ref SDS 6 WC8T, explaining
041328 - coordination with Pam in Outside Referrals that indicated he could
041329 - amend the referral for Millie's treatment to include lab work at UCSF,
041330 - reported on 090401 1214. ref SDS 5 RG5K The doctor thanked Millie for
041331 - coordinating these arrangements, implementing his request on 090325
041332 - for UCSF to treat Millie's cancer as a chronic disease. ref SDS 3 WE3N
041334 - ..
041335 - [On 090420 1451 Doctor Mason reported that other
041336 - patients do not have problems getting lab reports from
041337 - Kaiser for referral work at UCSF. ref SDS 16 2H8J
041339 - ..
041340 - [On 090423 0830 UCSF did not receive lab reports nor for
041341 - the CT test on 090413. ref SDS 18 TP9L
041343 - ..
041344 - [On 090508 1338 Millie received denial of services 3 weeks
041345 - late, showing growing problem of congestion in Outside
041346 - Referral Department similar to problems in delivering labs
041347 - to UCSF that justifies deference to doctor discretion
041348 - prescribing labs for Millie at UCSF. ref SDS 19 RF4N
041350 - ..
041351 - The doctor explained that further spread of IBC on Millie's lower left
041352 - arm reported in Millie's letter this morning on 090415 0949,
041353 - ref SDS 10 KG8Q, and citing Millie's letter to the medical team a few
041354 - days ago on 090412 2241 requesting immediate treatment, ref SDS 8
041355 - 9S9Y, shows it is urgent for UCSF to start treatment of Millie's
041356 - cancer as a chronic disease, as he discussed during the meeting at
041357 - Kaiser a few weeks ago on 090325. ref SDS 3 L15M
041359 - ..
041360 - Doctor Johnson advised that after getting Millie's letter this
041361 - afternoon on 090415 1424 reporting Millie has been suffering heavy
041362 - chest for the past week, ref SDS 11 GU8X, and then after talking to
041363 - Arlette, and further after getting Millie's letter explaining new
041364 - findings in the CT test on 090413, reported on 090415 1458,
041365 - ref SDS 12 R18A, he reviewed Kaiser's radiology report for Millie's CT
041366 - test on 090413 to check for progression of lung nodules, reported in
041367 - Arlette's call a few minutes ago this afternoon on 090415 1424 at
041368 - 1511. ref SDS 9 RZ4U, Additionally, Doctor Johnson related that he has
041369 - looked at the actual CT scans on Kaiser's computer for Millie's test
041370 - on 090413.
041372 - ..
041373 - Doctor Johnson reported during the call today that Kaiser's radiology
041374 - report may be "overstated" for the CT test on 090413 finding
041375 - progression of nodules in the lungs compared with the prior report on
041376 - 081230, and as related by Arlette in the call earlier today on 090415
041377 - 1458. ref SDS 12 R18A The doctor in this call indicated that he
041378 - finds progression of nodules in the lungs is actually mild, and may
041379 - reflect merely the angle of the test equipment, rather than represent
041380 - actual progression of cancer.
041382 - ..
041383 - The doctor further indicated his personal review this afternoon of
041384 - scans for Millie's CT test on 090413, shows that progression of
041385 - nodules in the lungs is likely a reaction to radiation, rather than
041386 - progression of systemic cancer in the lungs.
041387 -
041388 - [On 090415 1642 Millie received Doctor's letter
041389 - transmitting a report for the CT test on 090413, and
041390 - confirms explanation in phone call today on 090415 1519
041391 - that there are no findings of lung cancer in the test
041392 - report, and that direct review by the primary care
041393 - physician shows only minimal if any progression of nodules
041394 - in the lungs, and nothing in the lungs is causing
041395 - resperatory compromise for symptoms of heavy chest.
041396 - ref SDS 13 YO7M
041398 - ..
041399 - [On 090415 1642 report for CT test on 090413 received from
041400 - Kaiser says in part "Reticular nodular densities are seen
041401 - involving the lingula which demonstrate progression since
041402 - the previous examination. There are patchy reticular
041403 - nodular densities as well as ground glass opacities
041404 - involving bilateral lung zones which appear more
041405 - conspicuous since the previous examination. This is partly
041406 - related to difference in technique between the two studies.
041407 - ref SDS 13 RV78
041409 - ..
041410 - [On 090416 0010 Millie's letter to medical team confirms
041411 - understandings from Doctor Johnson's call today.
041412 - ref SDS 14 835R
041414 - ..
041415 - [On 090420 2352 Millie submits agenda to the medical team
041416 - for the meeting at UCSF on 090423, and notifies the team
041417 - that Doctor Johnson made an independent review of CT scans
041418 - and determined CT test report findings of lung nodules do
041419 - not present health care threats of cancer nor other
041420 - resperatory problems. ref SDS 17 MS4U
041422 - ..
041423 - [On 090420 2352 Millie reports to the medical team new IBC
041424 - on lower left arm; and, also, reports a vertical line in
041425 - the breastbone area of possible IBC or continuing reaction
041426 - to radiation. ref SDS 17 MS5Q
041428 - ..
041429 - [On 090423 0830 Doctor Hsu does not mention during
041430 - examination at 1200 discussions with Tara, ref SDS 18
041431 - CP4J; feels few light nodules in vertical line through
041432 - breastbone area may or may not be IBC and will heal from
041433 - continuing effects of radiation that ended on 090317.
041434 - ref SDS 18 EX4I
041436 - ..
041437 - [On 090514 0830 Doctor Rugo was concerned that ground
041438 - glass opacities were caused by Millie's radiation in
041439 - February and March. ref SDS 20 DE8M
041441 - ..
041442 - [On 090514 0830 Doctor Rugo seemed to concur that slight
041443 - increase in ground glass opacities listed in Millie's CT
041444 - test on 090413, and reviewed on 090415, were likely
041445 - reaction to radiation, rather than spread of cancer.
041446 - ref SDS 20 U85I
041448 - ..
041449 - [On 090609 Doctor Hsu advises there was a mistake
041450 - performing radiation in February and March at UCSF that
041451 - missed treating IBC in the breastbone area to the left
041452 - of the right breast, and this untreated IBC tumor may be
041453 - causing problems in Millie's lungs. ref SDS 21 TP9L
041455 - ..
041456 - [On 090626 0301 Doctor Johnson's medical chart for
041457 - examination at Kaiser finds some DOE for resperatory
041458 - system. ref SDS 22 EF7R
041460 - ..
041461 - [On 090705 0301 Millie reports untreated IBC in breastbone
041462 - area worse to stable, still bleeding; other areas may be
041463 - improved to stable, ref SDS 23 FT4T' Millie asks about
041464 - other ways to recover from UCSF medical mistake failing to
041465 - treat breastbone area? ref SDS 23 FT5R
041467 - ..
041468 - [On 090708 1343 Doctor Johnson ordered further tests to
041469 - evaluate Millie's breathing problems caused by progressive
041470 - radiation injury from medical mistakes providing radiation
041471 - services provided by UCSF. ref SDS 24 FS6G
041473 - ..
041474 - Doctor Johnson further advised that Millie's recurrence of IBC on the
041475 - left arm at the periphery of rediation treatments in February and
041476 - March is similar to another patient, also, treated for IBC with
041477 - radiation and hyperthermia. In that case, a 23 year old woman has
041478 - suffered IBC recurrence along the perimeter and outside of treated
041479 - areas, as Millie reported in her letter on 090412 2241, ref SDS 8
041480 - 9S8Y, and originally observed on 090331 0423. ref SDS 4 Q64R
041482 - ..
041483 - The doctor will submit a letter transmitting the CT test report, and
041484 - will present results of his personal examination of the scans, as
041485 - related in the call this afternoon, per above. ref SDS 0 E09J
041486 -
041487 - [On 090415 1642 Millie received Doctor's letter
041488 - transmitting a report for the CT test on 090413, and
041489 - confirms explanation in phone call on 090415 1519 that
041490 - there are no findings of lung cancer in the test report,
041491 - and that direct review by the primary care physician shows
041492 - only minimal if any progression of nodules in the lungs,
041493 - and nothing in the lungs is causing resperatory compromise
041494 - for symptoms of heavy chest. ref SDS 13 YO7M
041495 -
041496 -
041497 -
041498 -
041499 -
041500 -
041501 -
041502 -
0416 -