THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net
S U M M A R Y
DIARY: April 7, 2009 11:21 AM Tuesday;
Rod Welch
Amanda called Kaiser authorization Millie's referral to see Doctor Rugo.
1...Summary/Objective
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CONTACTS
SUBJECTS
Default Null Subject Account for Blank Record
0403 -
0403 - ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 32 0000. ref SDS 29 0000.
040502 -
040503 -
040504 -
040505 -
040506 -
040508 - ..
0406 -
0407 -
0408 - Background
0409 -
040901 - 1. On 080829 1200 Doctor Johnson reported in the medical chart
040902 - that examination at Kaiser diagnosed 5th relapse of IBC,
040903 - ref SDS 1 1Z6O; advised Millie to notify Doctor Rugo that
040904 - Kaiser will authorize treatment with "targeted drugs" for
040905 - Millie's relapse, because Millie has been treated with all of
040906 - the chemotherapy agents available at Kaiser. ref SDS 1 PX5V
040908 - ..
040909 - 2. On 080829 2256 Millie's letter to the medical team reports
040910 - Doctor Johnson's finding of swelled LN in left supraclavicular,
040911 - ref SDS 2 RP8T, and Millie's progression of disease requires
040912 - targeted treatments, ref SDS 2 RP9R; Kaiser wants UCSF to
040913 - prescribe new treatment in time to be effective. ref SDS 2 RP9W
040915 - ..
040916 - 3. On 081024 1150 Doctor Johnson authorized payment for Millie
040917 - continuing treatment on clinical study at UCSF, ref SDS 3 K67J;
040918 - explained requirements for treatment to start in time to be
040919 - effective because Millie's cancer has mutated into a more
040920 - aggressive disease; the doctor entered into Kaiser's medical
040921 - chart approval for treatment on referral at UCSF. ref SDS 3
040922 - OZ5F
040924 - ..
040925 - 4. On 081024 1354 Millie's letter notifies medical team that
040926 - primary care physician authorized treatment on referral to UCSF
040927 - with clinical study for double agent "targeted" treatment,
040928 - because Kaiser does not have treatments that can help Millie
040929 - recover from IBC. ref SDS 4 XZ8W
040931 - ..
040932 - 5. On 081219 1140 Doctor Johnson finds favorable response to
040933 - treatment of IBC 5th relapse with sunitinib, ref SDS 5 3L9L;
040934 - doctor cites urgency of timely treatment increases when Millie
040935 - suffers relapse; delay increases risk of losing control for
040936 - cancer that mutates into more aggressive disease. ref SDS 5
040937 - KU6F Doctor Johnson asked Millie to notify Doctor Rugo about
040938 - planning treatment for the 6th relapse to ensure treatment
040939 - starts in time to be effective, ref SDS 5 V93O, and asked for a
040940 - letter from UCSF to facilitate the next referral, ref SDS 5
040941 - SU8G; because the 6th relapse will be very serious, ref SDS 5
040942 - NS8H; further emphasized need for letter from UCSF recommending
040943 - treatment on referral from Kaiser. ref SDS 5 E84J
040945 - ..
040946 - 6. On 090115 0700 response to sunitinib treatment indicates IBC
040947 - on breastbone area stable to worse, everything else looks
040948 - stable. ref SDS 6 124N
040950 - ..
040951 - 7. On 090116 0913 Glenna called to ask about Millie's response to
040952 - treatment; cited the record no 090115. ref SDS 7 JY6L
040954 - ..
040955 - 8. On 090116 1030 Millie blood test at Kaiser cancer marker CA
040956 - 15-3 303 rises 100 points - 3 times higher than at anytime in
040957 - patient history. ref SDS 8 PQTQ
040959 - ..
040960 - 9. On 090116 1348 Glenna letter notifies Doctor Rugo Millie's
040961 - response to treatment causing rising fatigue, and IBC on
040962 - breastbone area looks worse. ref SDS 9 4P5M Millie's letter
040963 - later in the afternoon confirms understandings that IBC in
040964 - breastbone area looks stable to worse. ref SDS 10 IS6G
040966 - ..
040967 - 10. On 090118 0700 respnose to sunitinib treatment IBC now seems
040968 - worse in breastbone area. ref SDS 11 124N
040970 - ..
040971 - 11. On 090121 1017 Glenna calls to ask about Millie's response to
040972 - treatment, ref SDS 13 AJ3J; reported rising cancer marker CA
040973 - 15-3 303 on test at Kaiser 090116, and signals 6th relapse of
040974 - cancer, ref SDS 13 N95K; aligns with IBC worse in breastbone
040975 - area, reported in patient history on sunitinib treatment
040976 - reported 090120. ref SDS 12 124N
040978 - ..
040979 - 12. On 090122 2321 after Millie returns from treatment in
040980 - Emergency Room Department for injury to shoulder; message on
040981 - answering machine from Glenna, Doctor Rugo diagnosed 6th
040982 - relapse, wants Millie to end treatment with sunitinib in order
040983 - to remove toxicity from system so that she can start a new
040984 - treatment next week on 090129. ref SDS 14 J47F
040986 - ..
040987 - 13. On 090123 1326 Doctor Johnson called and concurs Millie has
040988 - suffered IBC relapse with cancer marker CA 15-3 303 in blood
040989 - test on 090116 at Kaiser; confirms Millie's cancer has mutated
040990 - to resist treatments available at Kaiser, authorizes UCSF to
040991 - prescribe next treatment. ref SDS 15 RK6O
040993 - ..
040994 - 14. On 090130 1722 reports meeting at UCSF 090129 0830 finds
040995 - cancer spreading rapidly, ref SDS 16 4S8O, Doctor Rugo
040996 - prescribes treatment with hyperthermia and Doxil to regain
040997 - local control, ref SDS 16 4S8O; starting treatment for 6th
040998 - relapse of IBC was delayed by communication problems.
040999 - ref SDS 16 AY8Q
041001 - ..
041002 - 15. On 090204 0219 Millie asks Doctor Rugo to submit an opinion on
041003 - likely scenarios and possible treatment options so that
041004 - proactive management will avoid scrambling at the last minute
041005 - to get things done for the next treatment, ref SDS 17 278T,
041006 - that were required for the current hyperthermia treatment
041007 - scheduled to begin tomorrow on 090205, and shown by case study
041008 - in the record on 09204 1914 listing chronology of delays.
041009 - ref SDS 18 MN5I
041011 - ..
041012 - 16. On 090204 1914 Doctor Rugo advised that Millie's treatment for
041013 - IBC would be evaluated in a meeting after treatment with
041014 - radiation and hyperthermia on referral from Kaiser to the UCSF
041015 - Radiation Oncology Department. ref SDS 18 278T
041017 - ..
041018 - 17. On 090204 1930 Millie letter advises that Kaiser and UCSF have
041019 - become a winning team providing effective and comprehensive
041020 - care treating cancer as a chronic disease. ref SDS 19 W84Q
041022 - ..
041023 - 18. On 090210 Lena called to schedule meeting with Doctor Rugo at
041024 - UCSF on 090212 0830. ref SDS 20 XU5N
041026 - ..
041027 - 19. On 090213 1140 Doctor Johnson supported proactive planning to
041028 - treat Millie's next relapse of IBC as a chronic disease,
041029 - ref SDS 21 GD3I, and approved meeting with Doctor Rugo at UCSF
041030 - to start research so that treatment can begin in time to be
041031 - effective. ref SDS 21 WZ6K
041033 - ..
041034 - 20. On 090317 0915 Millie completes treatment wtih radiation and
041035 - hyperthermia; Doctor Hsu scheduled to see Millie on 090423 1315
041036 - to evaluate response to treatment. ref SDS 23 5Q42
041038 - ..
041039 - 21. On 090324 0548 Millie's letter notifies medical team that
041040 - follow up meeting to assess response to treatment will be at
041041 - UCSF on 090423 1315. ref SDS 24 CT9R
041043 - ..
041044 - 22. On 090401 1210 Pam called in Kaiser's Outside Referrals office
041045 - and updated the scope of the referral for Millie's care to
041046 - include Doctor Hsu and Doctor Rugo, and that care will be
041047 - automatically extended 6 months to a year. ref SDS 26 KT8G
041049 - ..
041050 - 23. On 090402 1520 Millie notified medical team that referral for
041051 - Millie's care was conformed to medical requirements.
041052 - ref SDS 27 LG4G
041054 - ..
041055 - 24. On 090402 0119 Doctor Rugo responded in a letter saying to send
041056 - information on Kaiser's referral authorization to the UCSF
041057 - "authorization person." ref SDS 28 WB8F
041059 - ..
041060 - 25. On 090402 0855 Millie sent a letter to Glenna at UCSF asking
041061 - for assistance following up on Doctor Rugo's request to involve
041062 - the "authorization person," with respect to discussions
041063 - yesterday with Pam at Kaiser. ref SDS 29 U25I
041065 - ..
041066 - 26. Glenna called and said she forwarded Doctor Rugo's letter from
041067 - last night, and including a copy of Millie's letter on the
041068 - authorization issue to two people with request to follow up as
041069 - Doctor Rugo requests. ref SDS 29 PPTS
041071 - ..
041072 - 27. On 090403 1054 Millie sent a letter to Juanella Faison, listed
041073 - as an assistant for Doctor Rugo, ref SDS 31 L494, asking to
041074 - implement planning for Millie to meet with Doctor Rugo on
041075 - 090423 0800.
041077 - ..
041078 - 28. On 090407 0956 called and talked to Roy in UCSF Breast Care
041079 - Clinic who advised UCSF has still not scheduled Millie to meet
041080 - with Doctor Rugo on 090423 0800; also asked for assistance to
041081 - implement Doctor Rugo's request on 090402 to submit information
041082 - on the scope of Millie's referral to the "authorization person"
041083 - at UCSF. ref SDS 32 PP8X
041084 -
041085 -
041086 -
041088 - ..
0411 -
0412 -
0413 - Progress
0414 -
041401 - Received call from Amanda who supports Doctor Rugo in the Breast Care
041402 - Clinic. She related having received a message from Roy this morning
041403 - about Doctor Rugo's letter on 090402 0119, ref SDS 28 LA6H, asking for
041404 - the "authorization person" to process new information on Kaiser's
041405 - referral for Millie's care, which was submitted to the medical team on
041406 - 090401 1520. ref SDS 27 LG4G
041408 - ..
041409 - Amanda advised she cannot find Millie's letter sent 090401 1520,
041410 - ref SDS 27 LG4G, and further she cannot find Kaiser's referral for
041411 - Doctor Rugo to see Millie on 090423, and so that meeting cannot be
041412 - scheduled.
041414 - ..
041415 - Amanda asked that Millie send another copy of the letter to the
041416 - medical team explaining referral arrangements with Kaiser, so that
041417 - Amanda can investigate and take appropriate action to ensure Millie
041418 - gets timely care.
041419 -
041421 - ..
0415 -
0416 -
0417 - 1129
0418 -
041801 - Forwarded Millie's letter to the medical team on 090401 1520,
041802 - ref SDS 27 LG4G to Amanda at UCSF, per her request.
041803 -
041805 - ..
0419 -
0420 -
0421 - 1152
0422 -
042201 - Amanda called back and said she received the forwarded copy of
042202 - Millie's letter to the medical team on 090401 1520 explaining
042203 - discussions with the Outside Referral office at Kaiser. ref SDS 27
042204 - LG4G
042206 - ..
042207 - Amanda advised that she talked to Doctor Rugo. The doctor will be out
042208 - of town on 090423, and so wants Tara to make an examination on the
042209 - 23rd, and then report to Doctor Rugo, as Tara planned to do following
042210 - examination of Millie at UCSF on 090312 0800. ref SDS 22 SS4F
042212 - ..
042213 - Amanda will ask Doctor Rugo about changing the date of meeting on
042214 - 090423 to meet on a date convenient to Doctor Rugo's schedule.
042215 -
042216 - [On 090407 1442 called Kaiser to implement planning and
042217 - resolve problems for Millie's CT test scheduled on 090413
042218 - to ensure there is enough time for Kaiser to issue reports
042219 - for labs and the CT test that will be available in time for
042220 - Doctor Rugo's examination on 090423. ref SDS 33 WB6G
042222 - ..
042223 - [On 090408 1113 letter to medical team confirms Millie is
042224 - scheduled to meet with Tara on 090423 0830. ref SDS 34 E54L
042226 - ..
042227 - [On 090408 1113 letter to medical team confirms Amanda
042228 - checking with Doctor Rugo about changing the date for
042229 - Millie's examination to a date convenient for the doctor.
042230 - ref SDS 34 QW7Q
042231 -
042232 -
042233 -
042234 -
042235 -
042236 -
042237 -
042238 -
042239 -
042240 -
0423 -