THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net
S U M M A R Y
DIARY: January 31, 2009 11:28 AM Saturday;
Rod Welch
Millie asks Doctor Stritter for urgent 2nd opinion treat 6th IBC relapse.
1...Summary/Objective
........Medical Case Management Health Care Complex Communications
..............
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CONTACTS
SUBJECTS
2nd Opinion Retainer $300 Scope of Work Rceived Support Medical Tea
1803 -
1803 - ..
1804 - Summary/Objective
1805 -
180501 - Follow up ref SDS 64 0000. ref SDS 62 0000.
180502 -
180503 -
180504 -
180505 -
180507 - ..
1806 -
1807 -
1808 - Progress
1809 -
180901 - Background on working with Doctor Stritter is reported on 090106.
180902 - ref SDS 48 KI5I
180903 -
180904 - 1. Millie met Doctor Stritter during
180905 - seminar presentation at Wellness
180906 - Community cancer support
180907 - group.............................. 081018, ref SDS 28 PQ6X
180909 - ..
180910 - 2. Doctor Stritter asked for copies of
180911 - correspondence with the medical team
180912 - on Millie's response to sunitinib
180913 - treatment for cancer that supports
180914 - Doctor Stritter's research on
180915 - advanced cancer
180916 - treatments......................... 081018, ref SDS 28 1Y4G
180918 - ..
180919 - 3. Doctor Stritter was helpful finding
180920 - referral for resolving payment issues
180921 - with Kaiser for Millie's treatment
180922 - on referral to UCSF................ 081114, ref SDS 32 638G
180924 - ..
180925 - 4. Millie was confused, worried, and
180926 - emotional about plans to maintain
180927 - strong recovery from cancer and reduce
180928 - side effects by adjusting treatments
180929 - to tolerable levels on 081226,
180930 - presented during meeting at
180931 - UCSF............................... 081218, ref SDS 40 QW48
180932 - as set out in the letter confirming
180933 - understandings to the medical
180934 - team............................... 081218, ref SDS 41 GF4V
180935 - Millie submitted a copy to Doctor
180936 - Stritter of the letter on 081218 to
180937 - the medical team reporting results of
180938 - examination at
180939 - UCSF............................... 081218. ref SDS 41 4P7F
180941 - ..
180942 - 5. Millie sent a copy to Doctor Stritter
180943 - of another letter to the primary care
180944 - physician at Kaiser on 081219, requesting
180945 - assistance managing the work plan at
180946 - UCSF for Millie's treatment with
180947 - sunitinib.......................... 081219, ref SDS 43 KY8Q
180948 - noting that case management is
180949 - difficult due to limited time and emotional
180950 - feelings that prevent thorough analysis
180951 - during meetings with
180952 - doctors............................ 081219, ref SDS 43 SU8X
180954 - ..
180955 - 6. Millie's letter to Doctor Stritter
180956 - requested second opinion on Millie's
180957 - treatment with sunitinib staying at
180958 - full strength and reducing or ending
180959 - treatment with cyclophosphamide
180960 - to reduce side
180961 - effects............................ 081220, ref SDS 44 I69Q
180963 - ..
180964 - 7. Millie received a letter from Doctor
180965 - Stritter with terms and conditions for
180966 - 2nd opinion, and transmitting a pdf file
180967 - requesting patient history in a
180968 - questionnaire...................... 081223, ref SDS 45 8N9M
180970 - ..
180971 - 8. Questionnaire could not be filled out
180972 - in pdf file because Adobe Acrobat
180973 - could not be configured; information
180974 - requested in the form was
180975 - entered in the
180976 - record............................. 081223, ref SDS 45 DQ6J
180978 - ..
180979 - 9. Patient history for Doctor Stritter's
180980 - 2nd opinion support was developed
180981 - in the SDS record.................. 090106, ref SDS 48 IP6H
180983 - ..
180984 - 10. Millie sent letter to Doctor Stritter
180985 - with payment of $300 for 2nd
180986 - opinion services................... 090106, ref SDS 48 S34O
180987 - and listing objectives for
180988 - conslutation....................... 090106, ref SDS 48 6H3Q
180990 - ..
180991 - 11. Doctor Stritter notified Millie that
180992 - she was attending a professional conference
180993 - on integrative oncology conference in
180994 - Florida, and would respond to
180995 - Millie's letter on
180996 - 090114............................. 090107, ref SDS 50 PJ3I ,
180998 - ..
180999 - 12. Doctor Stritter called and advised she
181000 - needs another $300 to provide a 2nd
181001 - opinion on treatments for
181002 - Millie............................. 090114, ref SDS 51 U290
181003 - doctor requested support reviewing
181004 - Millie's complex patient history
181005 - for 2nd opinion
181006 - work............................... 090114, ref SDS 51 U271
181008 - ..
181009 - 13. Millie sent a letter to Doctor Stritter,
181010 - ref SDS 54 3C5O, following up the letter
181011 - on 090106 setting out scope of assignment,
181012 - ref SDS 48 S34O, confirming understandings
181013 - from the call on 090114, and submitting
181014 - additional information on pathology
181015 - reports and CT tests requested
181016 - by the doctor...................... 090119, ref SDS 51 U271
181018 - ..
181019 - 14. Called Doctor Stritter who asked for
181020 - information in a questionaire she
181021 - submitted with a letter to Millie on
181022 - 091223, ref SDS 45 DQ6J, the doctor
181023 - wants another $300 to provide a list
181024 - of treatments that can
181025 - help Millie........................ 090120, ref SDS 55 CM66
181027 - ..
181028 - 15. Millie sent a letter to Stritter Medical
181029 - Consulting transmitting information
181030 - requested in the Questionnaire
181031 - received in the record on
181032 - 081223............................. 090121, ref SDS 56 C57O
181034 - ..
181035 - 16. Regrettably, time has become a factor
181036 - because the cancer marker jumped to
181037 - CA 15-3 303 for the lab on 090116.
181038 - ref SDS 52 PQTQ; Millie needs
181039 - input as soon as
181040 - possible........................... 090121, ref SDS 56 SC5T
181042 - ..
181043 - 17. Dislocated shoulder from fall treatment
181044 - in Emergency Department on 090122, and
181045 - notice that UCSF ended Millie's
181046 - treatment with sunitinib due to 6th
181047 - relapse of IBC, and rising side
181048 - effects; copy of letter to
181049 - medical team sent to Doctor
181050 - Stritter........................... 090123, ref SDS 58 KR4P
181052 - ..
181053 - 18. Millie letter notified Doctor Stritter
181054 - that UCSF ended treatment with sunitinib
181055 - due progression of
181056 - disease............................ 090126, ref SDS 61 Q59G
181057 - Millie meeting with UCSF on 090129
181058 - asks Doctor Stritter for
181059 - treatment options.................. 090126, ref SDS 61 066T
181061 - ..
181062 - 19. Doctor Stritter letter proposes teleon
181063 - 2nd opinion on 090203 or on 090205 at
181064 - 1600, and needs payment of another
181065 - $300 paymnet in advance of
181066 - consultation....................... 090127, ref SDS 62 L24J
181068 - ..
181069 - 20. Millie submitted payment of $300 and
181070 - requests consultation on 090203,
181071 - requests receipt................... 090127, ref SDS 62 HO5W
181073 - ..
181074 - 21. Doctor Stritter receives payment;
181075 - says cannot have telecon on 090203;
181076 - asks about having consultation
181077 - on 090205 1600..................... 090130, ref SDS 64 4W6L
181079 - ..
181080 - Millie notifies Doctor Stritter of difficulties getting follow on
181081 - treatment set up; requests urgent 2nd opinions...
181082 -
181083 - 1. Subject: 2nd Opinion Needed Urgtently
181084 - Date: Sat, 31 Jan 2009 11:37:57 -0800
181091 - ..
181092 - 2. Responding to your letter yesterday on January 30 (seems like
181093 - ages ago now), ref SDS 64 4W6L, my cancer is progressing [see
181094 - Millie's letter to medical team on 090130, ref SDS 65 AY7X, and
181095 - lining up treatment options has been difficult, as shown in the
181096 - letter to the medical team yesterday, with a copy to you.
181097 - ref SDS 65 W858
181099 - ..
181100 - 3. While I understand that your practice includes talking to the
181101 - patient, I am primarily interested in your research and written
181102 - opinion listing treatments and sources for my patient profile.
181103 - For example, I had never heard of hyperthermia. Yesterday,
181104 - Tara, the Nurse Practitioner, who does most of the patient
181105 - examination work, and Doctor Rugo had glowing reports of
181106 - success treating IBC. I had asked for notice of what was to be
181107 - presented in order to be prepared for a productive meeting, and
181108 - Glenna, the coordinator said they didn't have time. I'm sure
181109 - she felt political pressure not to ask Doctor Rugo, because of
181110 - a hectic schedule.
181112 - ..
181113 - 4. So, we show up, nobody is prepared. Doctor Rugo said she told
181114 - Glenna a week ago to get authorization from Kaiser so I could
181115 - get treatment Thursday. This wasn't done, so no treatment.
181116 - Instead folks are scrambling trying write a coherent letter
181117 - under stress during a meeting; nobody can find the address. It
181118 - is a mess. ref SDS 65 AY9Q By the time this all gets done, the
181119 - guy who has to issue the authorization at Kaiser had left,
181120 - because on Friday he works in the afternoon at another Kaiser
181121 - facility [reported on 090129. ref SDS 63 3P7J]
181123 - ..
181124 - Medical Case Management Health Care Complex Communications
181125 -
181126 - 5. I'm sure this is nobody's fault. Doctor Rugo probably told
181127 - Glenna in the hallway to do 3 or 4 things, and other assistants
181128 - were told to do 2 or 3 things, and all of this could be
181129 - interpreted in multiple ways, causing endless bumbling with
181130 - everyone working hard by conversation.
181132 - ..
181133 - 6. Had a real battle to get Doctor Rugo to send a letter to Kaiser
181134 - recommending my next treatment. This took 10 minutes, but
181135 - required 30 minutes to be done correctly. However, the doctor
181136 - is under great pressure to spend that 10 minutes talking to the
181137 - next patient. It's a Knowledge Management dilemma.
181139 - ..
181140 - 7. The obvious question is are there other treatment that can help
181141 - me?
181143 - ..
181144 - 8. We can have the telecon you propose on Thursday, or any time at
181145 - your convenience. I would like an agenda a day or so before
181146 - with a partial list of possible treatments, so I can be
181147 - prepared with focused questions.
181148 -
181149 - [On 090202 Gwen submitted preliminary report on proposed
181150 - follow on treatments for Millie, which enables review to be
181151 - prepared for telecon consultation on 090205. ref SDS 67
181152 - EF9M
181154 - ..
181155 - [On 090203 2327 Millie receives Gwen's preliminary report
181156 - with possible treatments to maintain Millie's quality of
181157 - life, and which can guide telecon consultation scheduled
181158 - for 090205 1600. ref SDS 68 CF7J
181160 - ..
181161 - 9. Hopefully, the authorization for treatment at UCSF will come
181162 - through and this will relieve pressure on finding another
181163 - solution immediately, especially if the treatment is effective.
181164 -
181165 - [On 090202 Kaiser authorizes hyperthermia treatment for
181166 - Millie on referral at UCSF. ref SDS 66 SP6H
181168 - ..
181169 - 10. Thanks for hanging in there with me.
181170 -
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1812 -