THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net
S U M M A R Y
DIARY: January 22, 2009 11:21 PM Thursday;
Rod Welch
Glenna called left message on Millie starting new treatment next week.
1...Summary/Objective
2...Progression of Cancer 7th Relapse and 6th Relapse of IBC
..............
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CONTACTS
SUBJECTS
Default Null Subject Account for Blank Record
0403 -
0403 - ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 36 0000. ref SDS 28 0000.
040502 -
040503 -
040504 -
040506 - ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - Background...
040902 -
040903 - 1. On 090108 examination at UCSF showed possible progression of
040904 - IBC in breastbone area, cited in Millie's letter to the medical
040905 - team the next day on 090109. ref SDS 22 UC4H Millie reported
040906 - severe side effects in a letter on 090106, ref SDS 19 YO4S,
040907 - discussed with the medical team at UCSF on 090108, and cited by
040908 - reference in Millie's letter to the team on 090109. ref SDS 22
040909 - UF3Q UCSF prescribed another cycle sunitinib treatment, with
040910 - cyclophosphamide paused until blood counts increase to a safe
040911 - level. ref SDS 22 UF3T
040913 - ..
040914 - 2. On 090108 Millie received a letter from Glenna summarizing
040915 - understandings for the work plan presented during the meeting
040916 - earlier at UCSF on 090108. ref SDS 21 LX7O
040918 - ..
040919 - 3. On 090109, Millie submitted a letter to the medical team
040920 - presenting findings from the examination and transmitting
040921 - Glenna's work plan summary. ref SDS 22 UC4H
040923 - ..
040924 - 4. On 090116 Glenna called about Millie's response to sunitinib
040925 - treatments. during 3rd cycle of sunitinib. ref SDS 28 JY6L
040926 - Reviewed record on 090115 reporting IBC rash looks improved to
040927 - stable, and nodules in the breastbone area seem stable to
040928 - worse, ref SDS 26 124N, relative to detailed review on 090110,
040929 - ref SDS 23 124N, and after 7 days of treatment with only
040930 - sunitinib, and 21 total treatments with sunitinib since the
040931 - pause on 081218 and resuming on 081226, ref SDS 26 6C4J,
040933 - ..
040934 - 5. Millie talked on 090116 morning about reducing the dose of
040935 - sunitinib in order to reduce side effects. ref SDS 28 JY7J She
040936 - seems at this point still committed to trying the current
040937 - higher dose in order to optimize recovery, planned in the
040938 - meeting with the medical team on 090108, noted in Millie's
040939 - letter on 090109. ref SDS 22 UF3T
040941 - ..
040942 - 6. Asked Glenna about remedy to relieve side effects, mainly of
040943 - sore toes that prevent exercise that maintains immune system
040944 - for recoverying from cancer. ref SDS 28 PPUQ
040946 - ..
040947 - 7. On 090116 Millie received Glenna's letter planning a meeting
040948 - with Doctor Rugo to discuss Millie's case, ref SDS 30 YN9H, and
040949 - which attached a letter Glenna sent to the doctor describing
040950 - IBC in the breastbone area has worsened. ref SDS 30 FW3J
040952 - ..
040953 - 8. On 090116 Millie's letter to Glenna clarifies breastone area
040954 - looks stable to worse; everything else looks improved to
040955 - stable. ref SDS 31 IS6G Millie further reports rising side
040956 - effects of treatment, and requests remedy. ref SDS 31 IT4V
040958 - ..
040959 - 9. On 090118 Millie talks about wanting to end treatment with
040960 - sunitinib that seems now less effective and has severe side
040961 - effects after adding cycloposphamide. ref SDS 32 UC41
040963 - ..
040964 - 10. On 090121 Glenna called to discuss patient history showing
040965 - progression of cancer; Millie's 6th relapse of IBC. ref SDS 36
040966 - AJ3J Side effects continue to rise. ref SDS 36 TW53 Glenna
040967 - asked about Doctor Rugo's plans for follow on treatments.
040968 - ref SDS 36 Y67L Glenna wrote a letter to the doctor scheduling
040969 - a meeting to discuss changing treatment for Millie, ref SDS 36
040970 - N976, cited previously in Glenna's letter on 090116.
040971 - ref SDS 30 YN9H
040973 - ..
040974 - When Millie returned from the hospital late this evening on 090122 and
040975 - after treatment in the Emergency Department for a dislocated shoulder,
040976 - ref SDS 38 0001, there was a telephone message on the answering
040977 - machine from Glenna, ref SDS 38 ZH9O, responding to the telephone
040978 - message calling Glenna earlier today while at the hospital.
040979 - ref SDS 38 W466
040981 - ..
040982 - Glenna's message reported that she met with Doctor Rugo to develop a
040983 - new treatment plan for Millie, discussed previously in Glenna's call
040984 - yesterday on 090121, ref SDS 36 N976, implementing plans in Glenna's
040985 - letter to Millie on 090116, ref SDS 30 YN9H, and presenting to Doctor
040986 - Rugo the list of treatments which the doctor requested from the
040987 - patient, ref SDS 36 EV53, showing what has been considered for
040988 - Millie's patient profile. ref SDS 36 Y67L
040990 - ..
040991 - The message said Doctor Rugo has determined Millie has relapsed for
040992 - the 6th time (see below, ref SDS 0 J34U) with progression of IBC,
040993 - reported in patient history on 090120, ref SDS 34 124N, and discussed
040994 - with Glenna on 090121, ref SDS 36 N95K, citing the cancer marker CA
040995 - 15-3 303 rising 100 points in a few weeks, showin in Kaiser's lab last
040996 - on 090116. ref SDS 29 PQTQ Glenna said the doctor is concerned about
040997 - Millie suffering rising side effects of treatment with sunitinib,
040998 - reported on 090120. ref SDS 34 UC41 Doctor Rugo will meet with Millie
040999 - at the regular time next Thursday 090129 0830 to prescribe Millie's
041000 - next treatment for the 6th relapse of IBC.
041002 - ..
041003 - The meeting on 090129 will include another doctor to consult with
041004 - Doctor Rugo on Millie's treatment. Glenna advised that Doctor Rugo
041005 - ordered treatment with sunitinib to end today in order to remove
041006 - toxicity from the body in time for the new treatment to start on
041007 - 090129, after the meeting at 0830, following the usual practice the
041008 - past 2 years at UCSF getting of treatment after examinations.
041010 - ..
041011 - This aligns with Doctor Johnson's planning on 081219 for Millie to
041012 - start treatment of the 6th relapse in time to be effective before
041013 - cancer that has mutated into a more aggressive disease cascades out of
041014 - control. ref SDS 15 NS8H
041016 - ..
041017 - Progression of Cancer 7th Relapse and 6th Relapse of IBC
041018 -
041019 - Follow up ref SDS 10 J34U, ref SDS 9 0T8H.
041020 -
041021 - 1. Lymph node biopsy positive start
041022 - bevacizumab Taxotere.............. 040318, ref SDS 1 8R6M
041024 - ..
041025 - 2. Cancer marker IBC increase end
041026 - bevacizumab Taxotere due to
041027 - pulmonary embolism................ 041210, ref SDS 2 025H
041029 - ..
041030 - 3. Cancer marker IBC recurs 9 months
041031 - months after mastectomy........... 060711, ref SDS 3 025H
041033 - ..
041034 - 4. Cancer marker IBC worsens end
041035 - capeticabine Taxotere............. 061201, ref SDS 5 RU6J
041037 - ..
041038 - 5. IBC progression with increased
041039 - lymph nodes in axilla add
041040 - Carboplatin to cetuximab.......... 080306, ref SDS 9 NW3N
041042 - ..
041043 - 6. IBC worsesn CT test shows swelled
041044 - LN left supraclavicular; treatment
041045 - cetuximab and Carboplatin end;
041046 - begin work plan for sunitinib
041047 - metronomic protocol............... 081016, ref SDS 10 J34U
041049 - ..
041050 - 7. IBC symptoms rise aligns with
041051 - accelerating cancer marker CA 15-3
041052 - 303 Doctor Rugo diagnoses relapse
041053 - ends treatment on sunitinb
041054 - protocol.......................... 090122, ref SDS 0 J34U
041055 -
041057 - ..
041058 - [On 090123 Millie's letter to medical team reports progress at
041059 - UCSF scheduling Millie to start on a new treatment. ref SDS 40
041060 - KR4P
041062 - ..
041063 - [On 090123 Glenna called and advised that she has not met with
041064 - Doctor Rugo due to limited time, and that UCSF has not yet
041065 - specified a follow on treatment for Millie. ref SDS 41 TR7L
041067 - ..
041068 - [On 090123 Doctor Johnson, Millie's primary care physician at
041069 - Kaiser, called and advised that Doctor Rugo can prescribe
041070 - follow on treatment for Millie because her cancer has become
041071 - resistant to drugs available at Kaiser. ref SDS 42 8K6K
041073 - ..
041074 - [On 090126 Millie letter to Doctor Stritter reports UCSF
041075 - ended treatment on sunitinib due to progression of disease
041076 - and requests immediate input on follow on treatments for
041077 - Millie's 6th relapse of IBC. ref SDS 43 Q59G
041079 - ..
041080 - [On 090127 Millie's letter notified medical team that
041081 - primary care physician approves UCSF prescribing treatment
041082 - for Millie's 6th relapse from IBC, because recent rise of
041083 - cancer marker CA 15-3 303 for the labs at Kaiser on 090116
041084 - indicated Millie's cancer has mutated to cells that now
041085 - resist treatments available at Kaiser. ref SDS 44 TY5W
041087 - ..
041088 - [On 090127 Millie's letter to medical team reported side
041089 - effects of sunitinib treatment begin to subside 5 days after
041090 - UCSF ended treatment with the sunitinib protocol. ref SDS 44
041091 - TY8T
041093 - ..
041094 - [On 090212 0017 Millie's letter to medical team reports
041095 - rising fatigue, ref SDS 45 1N3U, even after ending
041096 - chemotherapy on 090122, ref SDS 39 AT6N, and hoping does
041097 - not signal cancer cascading out of control with CA 15-3 303
041098 - at Kaiser on 090116, ref SDS 29 PQTQ, cited by primary care
041099 - physician at Kaiser on 090123. ref SDS 42 RK6O
041101 - ..
041102 - [On 090331 2047 8th relapse of cancer, and 7th relapse of IBC
041103 - occurs on lower left arm, below area treated with radiation and
041104 - hyperthermia. ref SDS 46 Q69V
041105 -
041106 -
041107 -
041108 -
041109 -
041110 -
0412 -