CONTACTS 

SUBJECTS
Cancer Patient Friend Used SDS Record Intelligence Support Personal

1603 -
1603 -    ..
1604 - Summary/Objective
1605 -
160501 - Follow up ref SDS 14 0000, ref SDS 13 0000.
160502 -
160503 -
160504 -
160505 -
160507 -  ..
1606 -
1607 -
1608 - Progress
1609 -
160901 - Received ref DRT 1 0001 from Kathy saying...
160902 -
160903 -    1.  I was searching for information on obtaining a second opinion
160904 -        at Kaiser and found your website.  [...friend] is suffering
160905 -        from stage 4 lung cancer and is in horrible pain most of the
160906 -        time.  She is going to request a second opinion as we are not
160907 -        satisfied with how Kaiser is treating her or the timeliness of
160908 -        the treatment.
160909 -
160910 -            [On 060713 called Kathy with further assistance. ref SDS 15
160911 -            VQ6N
160913 -  ..
160914 - Big organizations, like Kaiser, UCB, DOD, IBM, Boeing, etc., present
160915 - frustrations of bureaucracy reviewed on 040203. ref SDS 6 E44K  Kaiser
160916 - advantages of integrated services increase productivity and the level
160917 - of care when management is added for working intelligently, as
160918 - reported on 011006. ref SDS 4 EL6J
160920 -  ..
160921 - Complex organization stifles productivity when connections of cause
160922 - and effect fail.  Equally, big organizations leverage individual
160923 - efforts when somebody adds energy to connect cause and effect that
160924 - yields the power of knowledge under the locality principle, reviewed
160925 - on 040312, ref SDS 7 YH4G, further explained in the lecture on
160926 - complexity. ref SDS 8 D85M
160927 -
160957 -   ..
160958 -  Kathy's letter continues...
160959 -
160960 -        Could you share the process [for getting a 2nd opinion] with me
160961 -        so I know what to expect.  We probably want to go to Stanford
160962 -        or UCSF.
160964 -         ..
160965 -    2.  I hope your situation ended positively for you and Millie.  It
160966 -        is a very hard time to get through for everyone and working
160967 -        through the redtape at Kaiser makes it much worse.
160969 -         ..
160970 -    3.  Thanks so much for any words of advice
160971 -
160972 -           http://www.welchco.com/sd/08/00101/02/04/10/07/094105.HTM#0001
160974 -  ..
160975 - Kathy provides a link to the record on 041007 when Millie and I picked
160976 - up records at Kaiser for 2nd opinions after Millie improved on the
160977 - Taxol-Avastin (Bevacizumab) trial. ref SDS 9 0001  This means Kathy
160978 - figured out on her own how to use explicit links for precision access
160979 - that expedite the work, explained on 050322, ref SDS 10 QZ8J, and
160980 - without reviewing guidance in POIMS. ref OF 6 6J6L  Her experience
160981 - supports planning for delivering anytime, anywhere intelligence on the
160982 - Internet, reported on 020905. ref SDS 5 0001
160984 -  ..
160985 - The record of 041007 shows steps for the patient to request assembly
160986 - and transfer of the patient's medical records needed to get a 2nd
160987 - opinion. ref SDS 9 QU4I  It has a link to the record on 050811 which
160988 - more explicitly lists tasks for getting a second opinion, ref SDS 11
160989 - 0001, which Kathy requests in her letter today. ref SDS 0 SD8O
160991 -  ..
160992 - This experience demonstrates support for "scalable knowledge" to solve
160993 - urgent problems, cited by Pat Lincoln at SRI in a letter on 010426,
160994 - ref SDS 2 449H, and discussed again the following month on 010527
160995 - asking about a "knowledge repository." ref SDS 3 4Q5I  At that time,
160996 - Pat gave an example of asking questions and getting useful knowledge
160997 - to accomplish important tasks, ref SDS 3 VU5N, illustrated by Kathy's
160998 - letter today, per above. ref SDS 0 VQ6N
161000 -  ..
161001 - Previously, on 010111 Pat was disappointed about slow progress toward
161002 - practical application of goals for Knowledge Management. ref SDS 1
161003 - EF6M
161004 -
161005 -
161006 -
161007 -
1611 -

SUBJECTS
Cancer Patient Assistance Obtaining 2nd Opinion from University of C

2003 -
2004 - 2152
200501 -  ..
200502 - Submitted ref DIT 1 0001 responding to Kathy's request, per above.
200503 - ref SDS 0 VQ6N
200504 -
200505 -    1.  Very sorry to hear in your letter today of your friend's
200506 -        difficulties. ref DRT 1 0001  She is fortunate to have you, and
200507 -        hopefully family support. ref DIT 1 0001
200509 -         ..
200510 -    2.  Millie got 2nd opinions twice, and we are just now gearing up
200511 -        to go through the exercise again due to another relapse.
200512 -        ref DIT 1 ST6K
200514 -         ..
200515 -    3.  Second opinions focus expertise on patient history with
200516 -        objective analysis.  Doctors who see patients all the time
200517 -        mostly rely on personal memory because they don't have time to
200518 -        look through the file, ref DIT 1 5I6O, -- for example, see a
200519 -        couple of paragraphs in NWO. ref OF 15 PXWX
200521 -         ..
200522 -    4.  Second opinions force careful review that can yield life saving
200523 -        ideas.  Here is a letter thanking UCSF, ref DIP 3 0001 for
200524 -        their 2nd opinion. ref DIT 1 GZ7L
200526 -  ..
200527 - Letter was submitted on 051108. ref SDS 12 SJ5H
200529 -  ..
200530 - Letter to Kathy continues...
200531 -
200532 -    5.  A letter to Stanford Med Center, ref DIT 1 WN8J, acknowledges
200533 -        their help in shaping Millie's treatment. ref DIP 2 0001
200535 -  ..
200536 - Letter was submitted on 051108. ref SDS 12 3H7K
200538 -  ..
200539 - Letter to Kathy continues...
200540 -
200541 -    6.  Millie drew on parts of both opinions to fashion a solution.
200542 -        Written opinions help move the primary care provider to change
200543 -        course. ref DIT 1 VO8O
200545 -         ..
200546 -    7.  There are some specific mechanics in getting 2nd opinions.  I
200547 -        don't want to overload you with a lot of details you may not
200548 -        want.  Feel free to follow up with questions. ref DIT 1 PP9M
200550 -         ..
200551 -    8.  On the 2nd go around of 2nd opinions, we did not use Stanford
200552 -        and UCSF; just letting you know there are a lot of private
200553 -        practitioners who offer excellent support at reasonable cost.
200554 -        ref DIT 1 00W2
200555 -
200556 -           [On 060713 called Kathy with further assistance.
200557 -           ref SDS 15 VQ6N
200558 -
200559 -
200560 -
200561 -
200562 -
200563 -
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200568 -
200569 -
200570 -
200571 -
200572 -
2006 -